| Autor: |
Swee-Sung Soon, Lopes, Gilberto, Hwee-Yong Lim, Durhane Wong-Rieger, Bahri, Salmah, Hickinbotham, Lucy, Jha, Anand, Bor-Sheng Ko, MacDonell, Diana, Jasmine Roah-Fang Pwu, Ruby Shih, Sirachainan, Ekaphop, Dong-Churl Suh, Janet Wale, Xiao Zhang |
| Předmět: |
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| Zdroj: |
Orphanet Journal of Rare Diseases; 2014, Vol. 9 Issue 1, p2-7, 6p |
| Abstrakt: |
This article is a call for action to the relevant stakeholders to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region by looking into three main areas: (a) developing legislative definitions to confer enforceable protection, (b) creating or strengthening policies by objectively measuring the impact brought about by rare diseases and establishing platforms to reach out to the rare disease community, and (c) fostering collaboration across sectors and countries. It is hoped that these suggested actions can catalyze discussions and progress in the region. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
| Externí odkaz: |
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