| Autor: |
McIntosh, Nathalie, Braddock, Bonnie R., Branda, Kelly J., Eanet, Karen, Goldberg, Simon, Kieffer, Stephanie A., Primiano, Lisa, Quercia, Nada, Taylor, Kelly A., Tsipis, Judith, Yashar, Beverly M., Yesley, Anne |
| Zdroj: |
Journal of Genetic Counseling; Aug2002, Vol. 11 Issue 4, p241, 3p |
| Abstrakt: |
In November 2000, the Genetic Services Committee of the National Society of Genetic Counselors (NSGC) convened a working group to draft a position paper on patenting of DNA-sequences. The mandate of the group was to produce general position statements that support the perspective and needs of consumers of DNA-based genetic tests and therapies (our patients and their families) and participants in DNA-based genetic research. After review and discussion of the literature on DNA-sequence patenting issues, the working group drafted position statement points that support current United States Patent and Trademark Office (USPTO) guidelines; broad licensing of DNA-sequence patents; nonenforcement of DNA-sequence patents in noncommercial research; reasonable royalty rates; an informed consent process for research participants that discloses whether they can share in any financial rewards relating to the project; the development of guidelines for licensing of DNA-sequence patents; and the establishment of oversight organizations to monitor licensing of DNA-sequence patents. These position statements were approved by the NSGC Board of Directors in the fall of 2001. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
| Externí odkaz: |
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