Informed Consent for Population-Based Research Involving Genetics.

Autor: Beskow, Laura M., Burke, Wylie, Merz, Jon F., Barr, Patricia A., Terry, Sharon, Penchaszadeh, Victor B., Gostin, Lawrence O., Gwinn, Marta, Khoury, Muin J.
Předmět:
Zdroj: JAMA: Journal of the American Medical Association; 11/14/2001, Vol. 286 Issue 18, p2315, 7p, 2 Charts
Abstrakt: Discusses the formation of a multidisciplinary group by the United States Centers for Disease Control and Prevention to develop an informed consent approach for integrating genetic variation into population-based research. Premise that the probability and magnitude of harm as well as possible benefits are directly related to the meaning of the results for the health of the participant; Proposal of the informed consent approach to promote discussion about how best to enable potential participants to make informed decisions.
Databáze: Complementary Index