Pediatric palliative care in Brazil: reflections on end of life based on geographic mapping.

Autor: Ferreira, Esther Angélica Luiz, Saito, Leandro, Sarracini, Maycon Rodrigo, Bruno, Cristina Helena, Mattos, Augustus Relo, Valete, Cristina Ortiz Sobrinho, Reiff, Rodrigo Bezerra de Menezes
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Zdroj: Research in Health Services & Regions; 11/28/2024, Vol. 3 Issue 1, p1-7, 7p
Abstrakt: Introduction: In Brazil, a country of continental dimensions, the lack of services in the different regions is a major barrier that prevents patients from accessing Pediatric Palliative Care (PPC). If accessing PPC is already challenging, end-of-life care for these patients may also be difficult. Therefore, this study is based on a recent mapping effort, aimed at reflecting on the end-of-life care for children in Palliative Care in Brazil. Method: Descriptive, cross-sectional study, and online survey research, based on a larger study of Palliative Care Network. Results: The final sample comprised 90 Pediatric Palliative Care services, which proved to be unevenly distributed across the country. Many services lack a minimum team, 40% face difficulties accessing opioids, and one-third do not provide bereavement care. Discussion: There should be more services with better distribution across the country, and a minimum team should be required to provide adequate care for children and adolescents. Strategies to improve symptom control and grief support should be introduced. Conclusions: It is concluded that continuing education and the inclusion of relevant topics in health courses are necessary. Additionally, health service managers must expand their focus to address these issues effectively. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index
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