Barriers and Facilitators to Youth Decision-Making Involvement in Families Referred for Stem Cell Transplant.
| Autor: | Schulz, Ginny Lynn, Painter, Angela Christine, McQueen, Amy, Shenoy, Shalini, DuBois, James M. |
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| Předmět: |
FAMILIES & psychology
TUMOR treatment CHRONIC disease treatment DECISION making in adolescence HEMATOPOIETIC stem cell transplantation QUALITATIVE research RESEARCH funding PARENT-child relationships INTERVIEWING PARENTING UNCERTAINTY DESCRIPTIVE statistics THEMATIC analysis SOUND recordings MOTIVATION (Psychology) RESEARCH methodology SOCIAL isolation |
| Zdroj: | Journal of Family Nursing; Aug2024, Vol. 30 Issue 3, p267-277, 11p |
| Abstrakt: | Youth prefer to be involved in treatment decisions, yet youth participation is minimally present in decisions like stem cell transplant (SCT) that require frequent medications and social isolation to be successful in curing cancer and chronic illness. The purpose of our study is to identify the barriers and facilitators to youth decision-making involvement in the youth–parent interaction when referred for treatment with SCT. We report qualitative findings from our theory-driven mixed-methods study. We thematically analyzed our field notes of youth and parent observations and audio-recordings during SCT consultations and semi-structured interviews. Data were collected from 10 youth, 8 to 16 (median 12) years of age, and their parents (n = 20). Three themes emerged: (a) Reluctant unless motivated, (b) Uncertain but capable, and (c) Limited unless supported. Our findings emphasize the critical role parents may take in facilitating youth involvement in decisions. [ABSTRACT FROM AUTHOR] |
| Databáze: | Complementary Index |
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