| Autor: |
Durston, Vicki, Mills, Samuel, Dunne, Siobhan, Dwyer, Sarah, White, Victoria |
| Předmět: |
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| Zdroj: |
Australian Journal of Cancer Nursing; Jul2024, Vol. 25 Issue 1, p45-46, 2p |
| Abstrakt: |
Background Although codesign projects are increasingly reported, few studies have explored the experiences of participants. Breast Cancer Network Australia's (BCNA) frequently engages in codesign projects with health professionals and consumers. Aim This study aims to assess participant experiences and BCNA's capability to deliver co-design projects that improve outcomes for people affected by breast cancer. Methods Qualitative interviews with lived experience (LE) and external stakeholder (ES) participants in two codesign projects were conducted by BCNA. The first step was development of a survey assessing BCNA information and support service needs for those with breast cancer. The second was a roundtable to progress advocacy to improve metastatic cancer data in Australia. 24 LE and 36 ES took part in the two projects. A random sample (ES n=8; LE n=11) were invited to participate in a qualitative interview. Interviews were recorded, transcribed and thematic analysis undertaken. Results To date, 8 interviews (ES n=3; LE n=5) have been conducted. All LE participants acknowledged the 'safe space' created that ensured they were heard and felt comfortable expressing their views. LE particpants discussed the expertise of BCNA in harnessing LE voices in their work, with this reflected in the running of the projects. ES participants also acknowledged BCNA's expertise specifically in delivering the roundtable. ES discussed the positive impact of involving LE participants with all mentioning the LE participants' passion in highlighting the importance of the project and humanising the need. Participants recognised the costs and time needed for effective codesign could be barriers to future projects. Conclusion While data collection is ongoing, early results suggest participating in codesign projects as a positive experience for both LE and ES. Including LE participants can assist in communicating the significance of issues to be better understood by ES and others. Results also indicate consumer organisations, such as BCNA, can deliver effective co-design projects to inform planning, implementation and evaluation of breast cancer policy, research, and information services. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
| Externí odkaz: |
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