'We are listening' Mother-led research exploring inclusive communication between autistic young people and their families.

Autor: Driver, Helen, Reynolds, Joanna, Cook, Tina, Bailey, Catherine
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Zdroj: Disability & Society; Aug2024, Vol. 39 Issue 8, p2137-2160, 24p
Abstrakt: This research engages Autoethnographic Participatory Action Research (APAR) to explore family communication within and between families of autistic young people in emerging adolescence. Autistic young people often have diverse ways of communicating and differences between family members' communication can result in barriers to family interaction. Much of the existing research in communication in autistic young people within family settings centres around younger children and little is known, therefore, about communication in families of autistic children in middle childhood as they meet the challenges of adolescence. This parent-led study engaged mothers from five families as co-researchers to explore communication within their own families. The action-reflection cycle of the APAR methodology proved to be an effective vehicle for gaining deeper understandings of the young person's unique situated communication. Findings presented in this article identify the importance of time and space as key enablers to inclusive communication within families. This article explores how autoethnographic participatory action research (APAR), carried out by five mothers with family members which include autistic young people, helped understand communicative interactions. Mothers from each family met in a group to talk about the different ways communication occurred within their families. They kept a journal, worked with other family members and added notes and drawings from their young people. Making notes in their journal and talking about communication helped the mothers to understand how they could all, as a family, improve communication with their autistic young people. They found that giving more time and space for communication helped autistic young people to be included in communication in their home. This is important to make sure they feel valued and listened to as they are growing up. This type of research is important as it helps families of autistic young people to understand their own interactions, it also builds knowledge about these real-life experiences that others can draw on. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index