Pediatric Neuromuscular Diseases and Psychosocial Wellbeing: Why We Also Need to Invest in Digital Platforms.

Autor: Gruebner, Oliver, Elayan, Suzanne, Sykora, Martin, Wolf, Markus, von Rhein, Michael, Fadda, Marta
Předmět:
Zdroj: International Journal of Public Health (Frontiers Media S.A.); 2024, p1-3, 3p
Abstrakt: This article discusses the challenges faced by individuals affected by pediatric neuromuscular diseases (NMDs) in Switzerland and the potential role of digital platforms in supporting them. It highlights the mental health challenges, burden of care, and lack of accessible psychological support for patients and families. The article suggests that digital platforms, such as chat bots and apps, could provide support in finding care, managing daily functioning, and promoting social inclusion. It also addresses the accessibility and mobility issues faced by individuals with NMDs and suggests that smart cities and IoT applications can provide more inclusive urban design and transit options. The conclusion emphasizes the need for a comprehensive approach to address the barriers faced by individuals with NMDs and their families. [Extracted from the article]
Databáze: Complementary Index