End-of-life care needs in cancer patients: a qualitative study of patient and family experiences.
Autor: | López-Salas, Mario, Yanes-Roldán, Antonio, Fernández, Ana, Marín, Ainhoa, Martínez, Ana I., Monroy, Ana, Navarro, José M., Pino, Marta, Gómez, Raquel, Rodríguez, Saray, Garrido, Sergio, Cousillas, Sonia, Navas, Tatiana, Lapeña, Víctor, Fernández, Belén |
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Předmět: |
FAMILIES & psychology
PSYCHOLOGY of the terminally ill PATIENT autonomy QUALITATIVE research AUTONOMY (Psychology) INTERVIEWING HEALTH PATIENT-family relations WORK-life balance DESCRIPTIVE statistics EMOTIONS DECISION making JUDGMENT sampling FAMILY attitudes THEMATIC analysis INFORMATION needs BURDEN of care RESEARCH methodology RESEARCH TERMINAL care MEDICAL needs assessment CANCER patient psychology GROUNDED theory PATIENT decision making NEEDS assessment PATIENTS' attitudes WELL-being |
Zdroj: | BMC Palliative Care; 6/21/2024, Vol. 23 Issue 1, p1-9, 9p |
Abstrakt: | Background: Cancer is a disease that transcends what is purely medical, profoundly affecting the day-to-day life of both patients and family members. Previous research has shown that the consequences of cancer are greatly aggravated in patients at the end of life, at a time when they must also grapple with numerous unmet needs. The main objective of this study was to obtain more in-depth insight into these needs, primarily in patients with end-stage cancer nearing death. Methods: Semi-structured interviews were conducted in Spain with cancer patients at the end of life (n = 3) and their family members (n = 12). The findings from the interviews were analyzed using qualitative thematic analysis and a grounded theory approach. Results: Four major themes emerged from the interviews that explored the needs and concerns of patients with cancer at the end of life: (1) physical well-being (2) emotional well-being (3) social well-being and (4), needs relating to information and autonomous decision-making. The interviews also shed light on the specific needs of family members during this period, namely the difficulties of managing increased caregiver burden and maintaining a healthy work-life balance. Conclusions: A lack of support, information and transparency during a period of immense vulnerability makes the end-of-life experience even more difficult for patients with cancer. Our findings highlight the importance of developing a more in-depth understanding of the needs of this population, so that informed efforts can be made to improve palliative healthcare and implement more comprehensive care and support at the end of life. [ABSTRACT FROM AUTHOR] |
Databáze: | Complementary Index |
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