| Autor: |
Martínez-Moragón, Eva, Antepara Ercoreca, Ignacio, Muñoz García, María, Casas Maldonado, Francisco, Calvín Lamas, Marta, Chiner Vives, Eusebi, Crespo Diz, Carlos, Díaz-Pérez, David, Eguiluz Gracia, Ibon, García Gil, Sara, González-Pérez, Ruperto, Habernau Mena, Alicia, Hermida Valverde, Tamara, Jornet Montaña, Sònia, López-Carrasco, Valentín, Martínez López, Icíar, Merino-Bohórquez, Vicente, Moreno-Ancillo, Álvaro, Mínguez Cabeza, Ana Cristina, Monte-Boquet, Emilio |
| Předmět: |
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| Zdroj: |
Journal of Asthma; Jun2024, Vol. 61 Issue 6, p619-631, 13p |
| Abstrakt: |
The study aimed to reach a consensus on the most relevant patient-reported outcomes (PROs), the corresponding measures (PROMs), and measurement frequency during severe asthma patient follow-up. Two Delphi rounds were conducted. The questionnaire was developed based on a systematic literature review, a focus group with patients, and a nominal group with experts. It assessed PROs' relevance and the appropriateness (A) and feasibility (F) of PROMs using a Likert scale (1=totally agree; 9=totally disagree). The consensus was established when ≥75% of participants agreed (1-3) or disagreed (7-9). Sixty-three professionals (25 hospital pharmacists, 14 allergists, 13 pulmonologists, and 11 nurses) and 5 patients answered the Delphi questionnaire. A consensus was reached on all PROs regarding their relevance. Experts agreed on the use of ACT (A:95.24%; F:95.24%), mini AQLQ (A:93.65; F:79.37%), mMRC dyspnea scale (A:85.71%; F:85.71%), TAI (A:92.06%; F:85.71%), MMAS (A:75.40%; F:82%), and the dispensing register (A:96.83%; F:92.06%). Also considered suitable were: SNOT-22 (A:90.48%; F:73.80%), PSQI (A:82.54; F:63.90%), HADS (A:82.54; F:64%), WPAI (A:77.78%; F:49.20%), TSQM-9 (A:79.37; F:70.50%) and knowledge of asthma questionnaire (A:77%; F:68.80%); however, their use in clinical practice was considered unfeasible. Panelists also agreed on the appropriateness of EQ-5D, which was finally included despite being considered unfeasible (A: 84.13%; F:67.20%) in clinical practice. Agreement was reached on using ACT, TAI, mMRC, and a dispensing register every three months; mini-AQLQ and MMAS every six months; and EQ-5D every twelve months. This consensus paves the way toward patient-centered care, promoting the development of strategies supporting routine assessment of PROs in severe asthma management. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
| Externí odkaz: |
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