A programme evaluation of 'First Steps': A peer-conceived, developed and led self-management intervention for people after a Parkinson's diagnosis.
| Autor: | Collett, Johnny, Lawrie, Sophie, Bromley, Sally, Harling, Peter, Reed, Alex, Brusco, Natasha, Coe, Shelly, Coebergh, Jan, Carroll, Camille, Roberts, Helen C, Hu, Michele T, Dawes, Helen |
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| Předmět: |
AFFINITY groups
SERVICES for caregivers PILOT projects EVALUATION of human services programs SOCIAL support CONFIDENCE intervals ACADEMIC medical centers SELF-management (Psychology) ACTIVITIES of daily living BURDEN of care MANN Whitney U Test HUMAN services programs PHYSICAL activity MEDICAL care use SELF-efficacy PRE-tests & post-tests PARKINSON'S disease COMMUNITY-based social services MENTAL depression QUALITY of life DESCRIPTIVE statistics QUESTIONNAIRES CHI-squared test RESEARCH funding ANXIETY ODDS ratio STATISTICAL sampling DATA analysis software |
| Zdroj: | Clinical Rehabilitation; Mar2024, Vol. 38 Issue 3, p403-413, 11p |
| Abstrakt: | Objective: A diagnosis of Parkinson's often leads to uncertainty about the future and loss of perceived control. Peer support may offer a means to address these concerns and promote self-management. Design: A programme evaluation of the feasibility and potential effects of 'First Steps', utilising a pragmatic step wedge approach. Comparing First Steps (intervention) to (control) conditions. Setting: In the community at four sites in southern England. Participants: Newly diagnosed (≤ 12months) people with Parkinson's. Intervention: First Steps was a 2-day peer-conceived, developed and led intervention to support self-management. Main measures: At 0, 12 and 24 weeks anxiety and depression (Hospital, Anxiety and Depression Scale, HADS), daily functioning (World Health Organisation Disability Assessment Schedule, WHODAS), physical activity, quality of life (EQ5D), carer strain and service utilisation were assessed. Results: Between February 2018 and July 2019, 36 participants were enrolled into intervention and 21 to control conditions, all were included in statistical analysis. Lost to follow up was n = 1 (intervention) and n = 1 adverse event was reported (control, unrelated). Of the 36 allocated to the intervention n = 22 participants completed both days of First Steps during the study period. Completion of outcome measures was >95% at 24 weeks. Small effects favouring the intervention were found for HADS (odds ratio (OR) = 2.06, 95% confidence interval (CI) 0.24:17.84), Carer Strain Index (OR = 2.22, 95% CI 0.5:9.76) and vigorous (d = 0.42, 95% CI −0.12:0.97) and total physical activity (d = 0.41, 95% CI −0.13:0.95). EQ5D, WHOSDAS and service utilisation, was similar between groups. Conclusions: First Steps was feasible and safe and we found potential to benefit physical activity, mental health and carer strain. Further research with longer-term follow up is warranted. [ABSTRACT FROM AUTHOR] |
| Databáze: | Complementary Index |
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