| Abstrakt: |
Objective: Caregiver burden is commonly experienced by family members of survivors of acquired brain injury (ABI). Research has demonstrated that self-awareness of survivors of ABI impacts family member burden (Rubin et al. 2020). This study utilized the discrepancy model of the Mayo-Portland Adaptability Inventory-4 (MPAI-4) to measure self-awareness by calculating a discrepancy score from self and family member-rated MPAI-4 total score. We examined the relationship between family member burden, time since injury, and level of self-awareness of survivors of ABI at discharge following holistic neurorehabilitation. Method: This retrospective study analyzed data on 28 individuals with heterogeneous ABI's who participated in a holistic milieu-oriented outpatient neurorehabilitation program from 2020–2023. Demographic information (age, education, race/ethnicity), injury history (injury type, age at injury, chronicity), program variables (length of program participation), functionality (MPAI-4), and family burden (Zarit Burden Interview) at discharge were collected. Results: A multiple linear regression analysis was run to predict family burden from self-awareness of survivors of ABI and time since injury. The multiple regression model statistically significantly predicted family burden, F(2, 24) = 6.698, p < 0.005, adj. R2 = 0.305. Only self-awareness added statistically significantly to the prediction, p < 0.002. Self-awareness accounted for 33.4% of the variance in family burden. Conclusion: Among family members of survivors of ABI, self-awareness of the survivor is an important predictor of burden experienced by family. Self-awareness, as measured by utilizing the MPAI-4 discrepancy model, explained a significant proportion of the variance in family burden regardless of time since injury. [ABSTRACT FROM AUTHOR] |
