Typologies of adaptation: parenting children with primary lymphoedema.

Autor: Radina, M. Elise, Martin, Mary M., Khatri, Rakhsha, Day, Meghan E., Cordeiro, Kristie E., Ramsey, Lauren M.
Předmět:
Zdroj: Journal of Lymphoedema; Jun2023, Vol. 18 Issue 1, p46-55, 9p
Abstrakt: Mothers of children with primary lymphoedema may be vulnerable to experiencing feelings ofhelplessness, frustration, grief, and excess stress that can lead to negative moods and child behavioural problems. This study aimed to gain an in-depth understanding ofthe lived experiences ofthese mothers. Data were collected using semi-structured interviews with mothers (n=26) of children with lymphoedema from seven countries. Qualitative data were coded using a codebook. Codes were then subject to discussion by the research team who identified a pattern of parenting approaches. Approaches to parenting fell along a continuum from unguarded, relaxed, and open to overprotective, anxious, and worried. These resulting typologies of these approaches provide insight into the unique challenges these mothers face that may be used by healthcare providers, social workers, child life specialists, and family life educators to ensure that mothers, fathers, and other caregivers are receiving the support they need. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index