| Autor: |
McErlean, Gemma, Tapp, Caley, Brice, Lisa, Pradhan, Anisha, Gilroy, Nicole, Kabir, Masura, Greenwood, Matt, Larsen, Stephen R, Moore, John, Gottlieb, David, Hertzberg, Mark, Brown, Louisa, Hogg, Megan, Huang, Gillian, Ward, Christopher, Kerridge, Ian |
| Předmět: |
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| Zdroj: |
Clinical Nursing Research; Nov2023, Vol. 32 Issue 8, p1134-1144, 11p |
| Abstrakt: |
Allogeneic hematopoietic stem cell transplantation (allo-HSCT) is an intensive but effective treatment for malignant and non-malignant diseases. However, long-term survival often comes at a cost, with survivors experiencing chronic morbidity and are at risk of relapse and secondary malignancy. This study aimed to describe decisional regret in a large cohort of Australian long-term allo-HSCT survivors. A cross-sectional survey was conducted with 441 adults in New South Wales, assessing quality of life (QoL), psychological, social, demographic, and clinical variables. Less than 10% of survivors expressed regret, with chronic graft-versus-host disease being the most important clinical factor. Psycho-socioeconomic factors such as depression, lower QoL scores, lower household income, higher treatment burden, and not resuming sex post-HSCT were also associated with regret. Findings highlight the need for valid informed consent and ongoing follow-up and support for allo-HSCT survivors dealing with life post-transplant. Nurses and healthcare professionals play a critical role in addressing decisional regret in these patients. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
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