Family functioning and quality of life among children with nephrotic syndrome during the first pandemic wave.

Autor:	Aman, Nowrin F., Fitzpatrick, Jessica, de Verteuil, Isabel, Vasilevska-Ristovska, Jovanka, Banh, Tonny Hue Minh, Korczak, Daphne J., Parekh, Rulan S.
Předmět:	COVID-19 NEPHROTIC syndrome HOME care services AGE distribution FAMILIES MANN Whitney U Test PSYCHOSOCIAL functioning SURVEYS T-test (Statistics) SLEEP disorders QUALITY of life DESCRIPTIVE statistics QUESTIONNAIRES FAMILY relations COVID-19 pandemic PARENTS LONGITUDINAL method DISEASE risk factors CHILDREN
Zdroj:	Pediatric Nephrology; Sep2023, Vol. 38 Issue 9, p3193-3198, 6p, 1 Graph
Abstrakt:	Background: During the SARS-CoV-2 global pandemic, one of the longest lockdowns worldwide occurred in Ontario, Canada, during the first wave. For parents and children managing care at home and at risk for COVID-19, the impact on their psychosocial functioning is unknown. Methods: A total of 122 families of children aged 2–18 years were enrolled as part of the prospective cohort of childhood nephrotic syndrome and completed a survey during the first wave of the pandemic (August 21–December 10), 2020. In a subset, 107 families had data available pre-pandemic to assess change. Validated measures included the McMaster Family Assessment Device (FAD) for parents and children ≥ 12 years for family functioning, the Patient Health Questionnaire for Depression and Anxiety (PHQ-4) for both parent and child, and Pediatric Quality of Life Inventory (PEDSQL™-V4) for children only. Scores were compared using Student's t-test or the Mann–Whitney U test, as appropriate. Results: Among the 107 children, 71% were male with a mean age of 9 years old at the time of questionnaire completion, and the mean age of parents was 41 years old. Parents and children reported that family functioning improved during COVID (parent: p < 0.01; child: p = 0.05). Children's overall HRQOL declined (p = 0.04), specifically increased sleep disruption (p = 0.01). Increasing child age was associated with a greater sleep disruption (β = − 1.6 [IQR: − 2.6, − 0.67]) and a related decrease in QOL (β = − 1.0 [IQR: − 1.7, − 0.2]), adjusted for sex. Conclusions: Despite the positive effects of family dynamics during the first wave, there were negative effects of sleep disruptions and reduced quality of life in children, especially among older children. [ABSTRACT FROM AUTHOR]
Databáze:	Complementary Index
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