A Mixed-Methods Feasibility Study: Eliciting ICU Experiences and Measuring Outcomes of Family Caregivers of Patients Who Have Undergone Hematopoietic Stem Cell Transplantation.
| Autor: | McAndrew, Natalie S., Erickson, Jeanne, Hetland, Breanna, Guttormson, Jill, Patel, Jayshil, Wallace, Lyndsey, Visotcky, Alexis, Banerjee, Anjishnu, Applebaum, Allison J. |
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| Předmět: |
CAREGIVER attitudes
INTENSIVE care units WELL-being SERVICES for caregivers ACADEMIC medical centers PROBLEM solving RESEARCH methodology MATHEMATICAL models BURDEN of care INTERVIEWING ACQUISITION of data EXPERIENCE CONCEPTUAL structures PSYCHOLOGICAL tests PSYCHOLOGY of caregivers REPEATED measures design THEORY FAMILY systems theory MENTAL depression MEDICAL records QUESTIONNAIRES DESCRIPTIVE statistics DECISION making RESEARCH funding HEMATOPOIETIC stem cell transplantation THEMATIC analysis PSYCHOLOGICAL adaptation ANXIETY METROPOLITAN areas STATISTICAL sampling PSYCHOLOGICAL resilience PSYCHOLOGICAL distress |
| Zdroj: | Journal of Family Nursing; Aug2023, Vol. 29 Issue 3, p227-247, 21p |
| Abstrakt: | The impact of an intensive care unit (ICU) admission on family caregivers of patients who have undergone hematopoietic stem cell transplantation (HSCT) has not been well described. Aims of this study were to determine the feasibility of conducting research with family caregivers of HSCT patients during an ICU admission and generate preliminary data about their experiences and engagement in care. Using a mixed-methods, repeated measures design, we collected data from family caregivers after 48 hr in the ICU (T1) and at 48 hr after transferring out of ICU (T2). Enrolling HSCT caregivers in research while in the ICU was feasible (10/13 consented; 9/10 completed data collection at T1); however, data collection at T2 was not possible for most caregivers. Caregiver distress levels were high, and engagement in care was moderate. The three themes that emerged from interviews (n = 5) highlighted that although HSCT family caregivers faced many challenges and received limited support during their ICU experience, they were able to access their own personal resources and demonstrated resilience. [ABSTRACT FROM AUTHOR] |
| Databáze: | Complementary Index |
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