| Autor: |
Pathak, Himanshu, Goyal, Mohit, Das, Parthajit, Santhanam, Sham, Khan, Ajaz Kariem, Malaviya, Sourabh, Pandey, Akshat, Patil, Pravin, Pandey, Bimlesh Dhar, Rath, Prasandeep, Pandey, Swetal, Jain, Neeraj, Jain, Somya, Dua, Amit, Goel, Anshul, Potikuri, Damodaran, Kedia, Arun Kumar, Ravindran, Vinod |
| Předmět: |
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| Zdroj: |
Rheumatology International; Aug2023, Vol. 43 Issue 8, p1531-1539, 9p |
| Abstrakt: |
Perception of the disease and its management impacts patients with Psoriatic arthritis (PsA) to a great degree. Studies examining patients' viewpoints and perception of their disease and its management are scarce. This multicentric cross-sectional survey was undertaken to understand the perspectives of patients with PsA. A survey questionnaire with items on demographics, awareness about their disease, treatment, physical therapy, quality of life and satisfaction with the care received was designed. After internal and external validation, a pilot survey was conducted, and the questionnaire was finalized. The final survey (with translations in local languages) was carried out at 17 centres across India. There were 262 respondents (56% males) with mean age of 45.14 ± 12.89 years. In 40%, the time lag between onset of symptoms and medical assessment for it was more than a year. In most of the patients, the diagnosis of PsA was made by a rheumatologist. Over 83% of patients were consulting their rheumatologist periodically as advised and fully compliant with the treatment. Lack of time and cost of therapy were the most common reasons for non-adherence to therapy. Eighty-eight patients (34%) were not fully satisfied with their current treatment. Over two-third of patients had never seen a physiotherapist due to barriers including a lack of time, pain, and fatigue. The daily activities and employment status were affected in nearly 50% of patients with PsA. The current survey has identified a gap in patients' awareness levels and helps healthcare providers in understanding the varied perceptions of patients with PsA. Addressing these issues in a systematic manner would potentially improve the treatment approaches, outcomes, and patient satisfaction levels. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
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Full text from SpringerLink