| Autor: |
Graham, Jessica, Liddle, Lynette, Mukula, Rose, Majoni, William, Mayo, Mark, Bista, Bronte, Hoppo, Libby, Hewett, Lani, Sajiv, Cherian, Fernandes, David |
| Předmět: |
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| Zdroj: |
Renal Society of Australasia Journal; 2022 Supplement, Vol. 18, p36-37, 2p |
| Abstrakt: |
Context: Researchers conducting the INFERR randomised control trial are required to obtain informed consent from participants using ethically approved consenting materials. There are clear guidance documents around the content of these consenting materials however there is a lack of literature describing tools and processes used to create effective and culturally safe consenting material for First Nation participants. Objectives: To describe the First Nations INFERR Research Assistants' pivotal role when designing resources for seeking individual informed consent from First Nations Haemodialysis patients. To outline the INFERR study team approach when evaluating the INFERR consenting process with dialysis patients, INFERR First Nations Reference Group Members and key community stakeholders in Central Australia. Key Messages: First Nations Research Assistants have worked with First Nations dialysis patients, the INFERR First Nations Reference Group and other researchers, to amend patient facing documents and how participants are recruited into the study. A continuous evaluation process has been integrated into the INFERR study through the formation of the INFERR First Nations Reference group and the adoption of the teach back method during participant recruitment. Conclusion: Communication aids, developed in partnership with local community members, the INFERR First Nations Reference group and local First Nations researchers, can assist with overcoming cultural and language barriers. Through continuously evaluating the consent process using the teach back technique, we have ensured the INFERR study is being conducted in a culturally appropriate manner and meets local and national requirements for the ethical conduct of research. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
| Externí odkaz: |
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