| Abstrakt: |
Objectives: To compare youth's overall quality of life having repaired non-syndromic cleft lip and palate with controls using a generic quality of life instrument, Youth Quality of Life - Research Version (YQOL-R). Methodology: The study was conducted from January 2017 to December 2018. Inclusion criteria were patients having repaired non-syndromic Cleft Lip and Palate, age 15 to 29 years, of either gender, while controls were healthy individuals of similar age. The participants were recruited through the non-probability convenience sampling technique. Written informed consent was obtained from all eligible participants before enrollment. Before the initiation of the study and recruitment and collection of data, ethical approval was sought from the Institutional Review Board of Karachi Medical and Dental College and the Patel Hospital. Quality of life was measured using the validated YQOL-R instrument. Data of 62 cases and 107 healthy controls consented to the study was analyzed using SPSS version 20. Results: Cronbach's alpha for domains of sense of self was 0.630, relationship domain (0.795), environmental domain (0.826) and general quality of life domain was 0.688 and for YQOL-R was 0.866. No significant difference lied between cases in controls in terms of gender, age categories, education categories and household income. Significant difference was observed for self care category (63.10 vs. 73.50; p-value = 0.001), relationship category (79.5 vs. 83.73; p-value = 0.013), environmental category (70.89 vs. 84.60; pvalue = 0.001), overall quality of life category (79.80 vs. 86.04; p-value = 0.012) and percent score of total perceptual score between cases and controls (73.32 vs. 81.97; p-value = 0.001). Conclusion: Cronbach's alpha for domains of sense of self was 0.630, relationship domain (0.795), environmental domain (0.826) and general quality of life domain was 0.688 and for YQOL-R was 0.866. No significant difference lied between cases in controls in terms of gender, age categories, education categories and household income. Significant difference was observed for self care category (63.10 vs. 73.50; p-value = 0.001), relationship category (79.5 vs. 83.73; p-value = 0.013), environmental category (70.89 vs. 84.60; pvalue = 0.001), overall quality of life category (79.80 vs. 86.04; p-value = 0.012) and percent score of total perceptual score between cases and controls (73.32 vs. 81.97; p-value = 0.001). [ABSTRACT FROM AUTHOR] |
