Family Function, Quality of Life, and Well-Being in Parents of Infants With Hypoplastic Left Heart Syndrome.
| Autor: | Mussatto, Kathleen A., Van Rompay, Maria I., Trachtenberg, Felicia L., Pemberton, Victoria, Young-Borkowski, Lisa, Uzark, Karen, Hollenbeck-Pringle, Danielle, Dunbar-Masterson, Carolyn, Infinger, Patricia, Walter, Patricia, Sawin, Kathleen |
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| Předmět: |
PARENT attitudes
WELL-being MOTHERS ADAPTABILITY (Personality) STATE-Trait Anxiety Inventory STATISTICS PREDICTIVE tests SOCIAL support HYPOPLASTIC left heart syndrome PARENTS of children with disabilities SELF-evaluation RESEARCH methodology MULTIPLE regression analysis FATHERS BURDEN of care RISK assessment PSYCHOLOGICAL tests T-test (Statistics) PSYCHOSOCIAL factors QUALITY of life QUESTIONNAIRES DESCRIPTIVE statistics REPEATED measures design CHI-squared test RESEARCH funding FAMILY relations PSYCHOLOGICAL adaptation STATISTICAL sampling DATA analysis software STATISTICAL correlation DATA analysis PSYCHOLOGICAL stress ALGORITHMS |
| Zdroj: | Journal of Family Nursing; Aug2021, Vol. 27 Issue 3, p222-234, 13p |
| Abstrakt: | Survival for hypoplastic left heart syndrome (HLHS) has improved dramatically. Little is known about early family function, quality of life (QOL), or well-being/adjustment for parents of infants with HLHS. Parent/family outcomes over time, predictors, and differences in 143 mothers and 72 fathers were examined. Parents reported better family function compared with published norms, but 26% experienced family dysfunction. QOL and well-being were significantly lower than adult norms. QOL scores generally declined over time, whereas self-reported well-being improved. Responses from mothers and fathers showed different trends, with mothers having worse scores on most measures and at most time points. Being a single parent was a risk factor for poorer family function, but not for lower individual QOL or well-being. Family characteristics, stress, and coping skills were predictive of outcomes. Parents' psychosocial responses to the challenges of life with infants with HLHS change over time. Individually tailored psychosocial support is needed. [ABSTRACT FROM AUTHOR] |
| Databáze: | Complementary Index |
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