Meet and eat, an interdisciplinary group intervention for patients with myotonic dystrophy about healthy nutrition, meal preparation, and consumption: a feasibility study.

Autor:	van Hees, Suzanne G. M., Knuijt, Simone, Dicke, Heleen, Groothuis, Jan T., Raaphorst, Joost, Satink, Ton, Cup, Edith H. C.
Předmět:	ATTITUDE (Psychology) CHANGE COOKING CULTURE DEGLUTITION disorders EXPERIENCE FOOD habits GROUNDED theory HEALTH behavior HEALTH promotion INGESTION INTERVIEWING RESEARCH methodology MEAT MYOTONIA atrophica NUTRITION education HEALTH outcome assessment RESEARCH STATISTICAL sampling SELF-evaluation QUALITATIVE research QUANTITATIVE research DATA analysis software DESCRIPTIVE statistics
Zdroj:	Disability & Rehabilitation; Jun2020, Vol. 42 Issue 11, p1561-1568, 8p, 2 Diagrams, 2 Charts
Abstrakt:	Purpose: To develop and evaluate an interdisciplinary group intervention for patients with myotonic dystrophy regarding healthy nutrition, meal preparation, and consumption, called Meet and Eat. Materials and methods: A design-based approach was used, exploring experiences and needs of patients with myotonic dystrophy and their next of kin. This resulted in a 4-week interdisciplinary outpatient group intervention to increase awareness and change behavior. In a mixed-method feasibility study this intervention was evaluated with participants and facilitators. Results: Participants reported on social impact of difficulties with eating and drinking (speaking, swallowing, and social embarrassment) and a variety of complaints affecting meal preparation and consumption. Patients and family members expressed the wish to learn from others. After delivery of the intervention, self-reported outcome measures demonstrated improvement on eating and drinking issues in daily life. The qualitative evaluation showed increased awareness and appreciation of the following design principles: peer support, multidisciplinary approach, active involvement of patient with myotonic dystrophy and their next of kin by using personal goals and motivational interviewing. Conclusion: Participation in Meet and Eat seemed to increase insight in patients' condition and ways of management. However, a longer self-management life style program is recommended to change behavior. Patients with myotonic dystrophy experience physical, cognitive and psychosocial problems to manage healthy nutrition, meal preparation, and consumption; This multidisciplinary group intervention Meet and Eat in patients with myotonic dystrophy appears to be feasible and seems to result in increased insight and management strategies; Peer support, multidisciplinary approach, personal goals, and involvement of family were key factors; To change eating and drinking behavior, a 4-week intervention is too short. [ABSTRACT FROM AUTHOR]
Databáze:	Complementary Index
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