Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson's disease.

Autor: Smolensky, Luba, Amondikar, Ninad, Crawford, Karen, Neu, Scott, Kopil, Catherine M., Daeschler, Margaret, Riley, Lindsey, 23andMe Research Team, Agee, Michelle, Alipanahi, Babak, Auton, Adam, Bell, Robert K., Bryc, Katarzyna, Cannon, Paul, Clarke, Sarah, Elson, Sarah L., Fonseca, Peter, Fontanillas, Pierre, Furlotte, Nicholas A., Hicks, Barry
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Zdroj: Scientific Data; 2/24/2020, Vol. 7 Issue 1, p1-9, 9p
Abstrakt: Fox Insight is an online, longitudinal health study of people with and without Parkinson's disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson's disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinson's disease- related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor. Measurement(s) Parkinson's disease • Patient Reported Outcome • SNP Technology Type(s) questionnaire • crowd sourced data generation • single-nucleotide polymorphism analysis Factor Type(s) cohort • data acquisition source • temporal interval • environmental risk factor • mds updrs • geriatric depression scale • medical history • family neurological history • sleep disorder • handedness • demographics • physical activities • caregiver • daily living • LRRK2 • APOE • SNCA • GBA Sample Characteristic - Organism Homo sapiens Machine-accessible metadata file describing the reported data: 10.6084/m9.figshare.11794011 [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index