The key challenges of discussing end-oflife stroke care with patients and families: a mixed-methods electronic survey of hospital and community healthcare professionals.

Autor: Doubal, F., Cowey, E., Bailey, F., Murray, S. A., Borthwick, S., Somerville, M., Lerpiniere, C., Reid, L., Boyd, K., Hynd, G., Mead, G. E.
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Zdroj: Journal of the Royal College of Physicians of Edinburgh; Sep2018, Vol. 48 Issue 3, p217-224, 10p
Abstrakt: Background Communication between professionals, patients and families about palliative and end-of-life care after stroke is complex and there is a need for educational resources in this area. Methods To explore the key learning needs of healthcare professionals, a multidisciplinary, expert group developed a short electronic survey with open and closed questions, and then distributed it to six UK multiprofessional networks and two groups of local clinicians. Results A total of 599 healthcare professionals responded. Educational topics that were either definitely or probably needed were: ensuring consistent messages to families and patients (88%); resolving confiicts among family members (83%); handling unrealistic expectations (88%); involving families in discussions without them feeling responsible for decisions (82%); discussion of prognostic uncertainties (79%); likely mode of death (72%); and oral feeding for 'comfort' in patients at risk of aspiration (71%). The free-text responses (n = 489) and 82 'memorable' cases identified similar themes. Conclusion Key topics of unmet need for education in end-of-life care in stroke have been identified and these have infiuenced the content of an open access, web-based educational resource. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index