Activities that girls and women with Rett syndrome liked or did not like to do.

Autor: Sernheim, Åsa-Sara, Hemmingsson, Helena, Witt Engerström, Ingegerd, Liedberg, Gunilla
Předmět:
Zdroj: Scandinavian Journal of Occupational Therapy; Jul2018, Vol. 25 Issue 4, p267-277, 11p
Abstrakt: Objective: Activities occur in all people’s lives. This study investigated over a period of time, 15 years, what activities were enjoyed or not enjoyed and what activities parents and staff liked to do with girls/women with Rett syndrome. Method: A descriptive study was conducted using secondary data from three earlier questionnaires at the Swedish National Rett Center. The first questionnaire provided data on 123 girls/women with Rett syndrome, the second on 52 and the third questionnaire, on 39. Informants were parents and/or staff, in total 365. Open-ended questions were analysed using a content analysis approach. Results: Three categories appeared: Being in motion, receiving impressions and having contact. Bathing/swimming, listening to music and being outdoors/walking were the most enjoyed activities over the years. Of the few activities that were reported as being unenjoyable, most were daily care activities. The activities that the parents/staff enjoyed doing with the girls/women were similar to those the girls/women themselves liked to do. Conclusion: A preliminary overview for both liked and disliked activities of girls/women with Rett syndrome was presented. This knowledge could facilitate the choice and use of activities. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index
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