Design Issues in E-Consent.

Autor: Wilbanks, John
Předmět:
Zdroj: Journal of Law, Medicine & Ethics; Spring2018, Vol. 46 Issue 1, p110-118, 9p, 3 Diagrams
Abstrakt: Electronic informed consent represents an opportunity to redesign the way that participants understand and elect to enroll in clinical research studies. However, electronic consent faces certain barriers common to all informed consent processes and other barriers specific to the technical environment. At Sage Bionetworks, we designed an electronic consent process as a software product and released it as an open source tool. We believe that using contemporary design processes to intentionally create cognitive friction, where potential study participants are confronted with interfaces that require them to slow down and contemplate study concepts, offers a significant opportunity for ethical design as research increasingly uses smartphones and digital methodologies. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index