| Autor: |
Longmuir, P. E., Xia, M. Y., Doja, A., Duffy, C. M., Gardin, L., Gow, R. M., Jurencak, R., Katz, S. L., Lai, L. S. W., Lamontagne, C., Lee, S., Lougheed, J., McCormick, A., McMillan, H. J., Pohl, D., Roth, J., Theoret-Douglas, C., Duffy, K. Watanabe, Wong, D., Zemek, R. |
| Předmět: |
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| Zdroj: |
Pediatric Exercise Science; 2016 Supplement, Vol. 28, p43-43, 1/2p |
| Abstrakt: |
Background: Academic hospitals combine clinical care, research and teaching. It is expected that patients will be seen by trainees (implied consent) but how patients are approached for research varies. Research may be integrated within the clinic setting or a distinct entity. Little is known about parent perceptions of research and teaching activities at academic hospitals, and whether perceptions differ by medical condition. Methods: Surveys of parents of children attending a tertiary care hospital. Four questions asked willingness to be approached for a) research or b) teaching, either i) during the hospital visit or ii) at home. Responses were always willing, probably willing, depends on specific request, not prior to discussion with the child's physician, not willing to be approached.Results: 158 parent surveys collected from parents of children, 3 to 14 years, with chronic illnesses (rheumatology (n=34), cardiology (n=52), respirology (n=22), neurology (n=50)), physical disabilities (rehabilitation (n=8), spina bifida (n=2) chronic pain (n=1)) or seen in the emergency department (n=31). 87%/91% of illness/disability parents, respectively, would always/probably be willing to have their child seen by a trainee, compared to 74% of emergency parents. Always/probably willing to participate in trainee education outside clinic visit was 50%, 63% and 42% among illness, disability and emergency parents. 72%/92% of illness/disability parents were always/probably willing to be approached for research during the clinic visit, compared to 55% of emergency parents. Contact at home regarding research differed significantly between groups (p=0.02). 76%/92% of illness/disability parents were always/probably willing, versus 52% of emergency parents. 7% of emergency parents would never want their child seen by a trainee or to be approached for research compared to <2% of illness/disability parents.Discussion: Parents have positive attitudes towards both education and research activities during the clinic visit. Support for research is similarly strong among parents of children with a chronic illness or disability approached at home. These results indicate that parents view both research and education in a similar fashion. Clinicians who follow children with a chronic illness or disability should contact families regarding research opportunities, either in clinic or at home. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
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