Patients’ and Family Members’ Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China.

Autor: Wei, Shanshan, Chen, Fanglin, Chen, Hongyan, Guo, Ying, Hui, David, Yennurajalingam, Sriram, Chisholm, Gary, Liu, En, Liao, Zhongli, Yang, Li, Cheng, Heng, Zhou, Yuanyuan, Guo, Hong, Bruera, Eduardo
Zdroj: American Journal of Hospice & Palliative Medicine; Sep2016, Vol. 33 Issue 8, p733-741, 9p
Abstrakt: Background: Understanding the medical decision-making and information disclosure preferences is important for care quality. Objectives: To examine the feasibility of using the questionnaires and to identify modifications needed in the following study. Design: Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires. Results: More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions. Conclusions: Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries. [ABSTRACT FROM AUTHOR]
Databáze: Complementary Index