| Autor: |
Ridner, Sheila, Rhoten, Bethany, Radina, M., Adair, Melissa, Bush-Foster, Sydney, Sinclair, Vaughn, Ridner, Sheila H, Rhoten, Bethany A, Radina, M Elise |
| Předmět: |
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| Zdroj: |
Supportive Care in Cancer; Jun2016, Vol. 24 Issue 6, p2743-2750, 8p |
| Abstrakt: |
Purpose: To solicit breast cancer survivors' perspectives on the variety of issues they face related to lymphedema self-care and identify support needs perceived as critical for managing their chronic medical condition.Methods: Twenty-one breast cancer survivors with lymphedema participated in audio-recorded focus groups about barriers and facilitators of self-care. Transcripts were analyzed using ATLAS.ti software by two coders. Triangulation of findings provided for refinement and category confirmation.Results: Themes identified included lack of social support, lack of resources for self-care activities, and self-advocacy by default. Lack of social support subthemes were feeling misunderstood, minimization of needs, and feeling criticized. Lack of resources for self-care activities subthemes were lack of both tangible self-care support and self-care supplies. Self-advocacy by default subthemes were the need to proactively manage lymphedema complications, the need to educate health-care workers, and feeling marginalized by the health-care system.Conclusions: Lack of support and the failure of others to recognize lymphedema as a chronic condition set this patient population apart from other patients with chronic diseases and decreases the amount of help needed to manage the condition. [ABSTRACT FROM AUTHOR] |
| Databáze: |
Complementary Index |
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