Development and testing of a generic patient decision aid for end-of-life care.

Autor: Jensen HI; Department of Anesthesiology and Intensive Care, Vejle Hospital, a part of Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark; Department of Anesthesiology and Intensive Care, Kolding Hospital, a part of Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark; Department of Regional Health Research, University of Southern Denmark, Odense M, Denmark. Electronic address: hanne.irene.jensen@rsyd.dk., Farmer SLH; Department of Medicine, Hematology, Vejle Hospital, a part of Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Skaarup LO; Department of Medicine, Hematology, Vejle Hospital, a part of Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Løkke A; Department of Regional Health Research, University of Southern Denmark, Odense M, Denmark; Department of Medicine, Vejle Hospital, a part of Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Hygum A; Department of Oncology, Palliative Care Unit, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Ipsen MJ; Department of Quality, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Gamst LH; Center for Shared Decision-making, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Klausen MB; Center for Shared Decision-making, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark.
Jazyk: angličtina
Zdroj: Patient education and counseling [Patient Educ Couns] 2024 Dec 17; Vol. 132, pp. 108608. Date of Electronic Publication: 2024 Dec 17.
DOI: 10.1016/j.pec.2024.108608
Abstrakt: Objectives: The objective of this study was to develop and test a patient decision aid for end-of-life care to be used when some or all life-sustaining treatments have been withheld or withdrawn.
Methods: A multi-professional, multi-sectorial group together with patients and relatives used a systematic process to develop and test the patient decision aid, including alpha and beta testing.
Results: Healthcare professionals, patients and relatives were involved in the development and testing. The final Decision Helper included three areas with nine options: follow-up (outpatient clinic and general practitioner), palliative care (primary care, specialised palliative care team, hospital admission and hospice) and treatment level (intensive care, resuscitation attempt and nutrition via feeding tube). Most participants agreed that the amount of information in the Decision Helper was appropriate, that it clearly presented benefits and disadvantages and that it was useful in the value clarification process, helping to verbalise preferences and what is most important for patients.
Conclusions: Most patients and healthcare professionals found that the decision aid would be helpful in facilitating shared decision-making in an end-of-life conversation.
Practice Implications: The decision aid will be usable in different healthcare setting ensuring that end-of-life care is in accordance with patients' wishes.
Competing Interests: Declaration of Competing Interest Development and testing of a generic patient decision aid for end-of-life care Hanne Irene Jensen: I have nothing to declare Sarah Leeth Hansen Farmer. I have nothing to declare Lillian Oxholm Skaarup. I have nothing to declare Anders Løkke. I have nothing to declare Anette Hygum. I have nothing to declare Mette Jo Ipsen. I have nothing to declare Lisbeth Høilund Gamst. I have nothing to declare Maybritt Brunsgård Klausen I have nothing to declare
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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