Engaging Red River Métis families in Manitoba in the development of child health resources - findings from a qualitative study.

Autor: Knisley L; Children's Hospital Research Institute of Manitoba, Winnipeg, Canada.; Faculty of Nursing, University of Alberta, Edmonton, Canada.; Rady Faculty of Health Science, College of Nursing, University of Manitoba, Winnipeg, Canada., Driedger SM; Rady Faculty of Health Science, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada., Hartling L; Alberta Research Centre for Health Evidence, Department of Pediatrics, University of Alberta, Edmonton, AB, Canada., Chartrand F; Manitoba Métis Federation, Winnipeg, Canada., Sanguins J; Rady Faculty of Health Science, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada., Scott SD; Faculty of Nursing, University of Alberta, Edmonton, Canada. shannon.scott@ualberta.ca.; Faculty of Nursing, Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, Edmonton, AB, T6G 1C9, Canada. shannon.scott@ualberta.ca.
Jazyk: angličtina
Zdroj: Research involvement and engagement [Res Involv Engagem] 2024 Dec 18; Vol. 10 (1), pp. 128. Date of Electronic Publication: 2024 Dec 18.
DOI: 10.1186/s40900-024-00659-y
Abstrakt: Background: Most research that includes Red River Métis tends to be pan-Indigenous. Grouping Métis with First Nations and Inuit can diminish their unique and diverse experiences, as well as distinctions-based approaches. Taking a step toward addressing this problem, the Manitoba Métis Federation (MMF; the national government of the Red River Métis) invited researchers within the Canadian network Translating Emergency Knowledge for Kids to partner in this research, which focuses on understanding engagement strategies that can help expose Red River Métis parents to child health research opportunities and build trust and transparency amongst research partners and participants.
Methods: A qualitative descriptive approach underpinned by a participatory paradigm guided this study. Semi-structured interviews were conducted with 19 Red River Métis parents and Elders via Zoom or telephone. An inductive thematic analysis approach was used to explore patterns and themes across the data.
Results: Analysis generated four themes: (a) show me why you are here; (b) make it easier for me to take part; (c) create welcoming spaces; and (d) it should be a give and take experience. Parents emphasized the importance of kinship and personal connections, and said they want to hear about child health study opportunities from trusted organizations. They want researchers to be transparent about their research motivations and to offer multiple ways to participate to help them fit research into their busy lives. Relational approaches within the research process (e.g., creating informal/welcoming environments, gathering over food, fostering shared learning/creative opportunities) are prominent in the findings.
Conclusion: There is a dearth of research focused on the distinct experiences of Red River Métis families. Engaging Red River Métis parents early in the research process will help incorporate their preferences and perspectives into the design of a larger project to adapt child health resources. More training is needed to help researchers improve their abilities to engage in self-reflection, listen, recognize power relationships, and demonstrate trust and transparency in each research interaction. It is only through respectful and successful engagement that child health research can be relevant, applicable and positively impact Red River Métis children, families and communities.
Competing Interests: Declarations. Ethics approval and consent to participate: Ethics approval was obtained from the Manitoba Métis Federation and University of Alberta Health Research Ethics Board [#Pro00111866]. Informed consent was obtained from participants and described in the manuscript. Consent for publication: Not applicable. Participant details are anonymized. Competing interests: The authors declare no competing interests.
(© 2024. The Author(s).)
Databáze: MEDLINE
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