Using Participatory Narrative Inquiry to Assess Experiences and Self-Experimentation with Diet Interventions in Inflammatory Bowel Disease Patients.

Autor:	Hos C; Tytgat Institute for Liver and Intestinal Research, Amsterdam UMC, University of Amsterdam, Meibergdreef 69-71, 1105 BK Amsterdam, The Netherlands., Tebbens M; Tytgat Institute for Liver and Intestinal Research, Amsterdam UMC, University of Amsterdam, Meibergdreef 69-71, 1105 BK Amsterdam, The Netherlands., Bezema T; Immunowell Foundation, 3947 NZ Langbroek, The Netherlands., Bosch JA; Department of Psychology, University of Amsterdam, 1018 WS Amsterdam, The Netherlands.; Department of Medical Psychology, Amsterdam UMC, University of Amsterdam, 1105 AZ Amsterdam, The Netherlands., Kraneveld AD; Division of Pharmacology, Department of Pharmaceutical Sciences Utrecht Institute for Pharmaceutical Sciences, Utrecht University, 3584 CG Utrecht, The Netherlands., Spooren CEGM; Department of Internal Medicine, School of Nutrition and Translational Research in Metabolism (NUTRIM), Maastricht University, 6200 MD Maastricht, The Netherlands.; Division of Gastroenterology-Hepatology, Maastricht University Medical Centre, 6229 HX Maastricht, The Netherlands., de Haas MC; Immunowell Foundation, 3947 NZ Langbroek, The Netherlands., Stokkers PCF; Department of Gastroenterology and Hepatology, OLVG West, 1061 AE Amsterdam, The Netherlands., Duijvestein M; Department of Gastroenterology, Radboud University Medical Center, 6525 GA Nijmegen, The Netherlands., Bouma G; Department of Gastroenterology and Hepatology, Amsterdam UMC, University of Amsterdam, 1081 HV Amsterdam, The Netherlands.; Amsterdam Gastroenterology Endocrinology Metabolism (AGEM), 1105 AZ Amsterdam, The Netherlands., Te Velde AA; Tytgat Institute for Liver and Intestinal Research, Amsterdam UMC, University of Amsterdam, Meibergdreef 69-71, 1105 BK Amsterdam, The Netherlands.; Amsterdam Gastroenterology Endocrinology Metabolism (AGEM), 1105 AZ Amsterdam, The Netherlands.
Jazyk:	angličtina
Zdroj:	Nutrients [Nutrients] 2024 Nov 24; Vol. 16 (23). Date of Electronic Publication: 2024 Nov 24.
DOI:	10.3390/nu16234027
Abstrakt:	Background and Aims: To improve quality of life (QoL), patients with inflammatory bowel diseases (Crohn's disease and ulcerative colitis) often self-experiment with lifestyle changes such as dietary modifications. The nature (e.g., type of interventions, expectations, perceived efficacy) of these single-subject experiments has not been systematically investigated. Method: We used Participatory Narrative Inquiry (PNI), a structured qualitative method, to obtain information about these experiments through patient stories. Results: We demonstrate that PNI can be a method to collect and analyze IBD patient ideas and experiences regarding lifestyle and nutritional factors in a structured manner to reveal valuable insights for personal and scientific follow-up research. Patients report rest, (psychological) balance, and a change in diet when describing times when they experienced a better QoL. When focusing on diet, patients reported a considerable number of food products that were experienced as beneficial by one person but detrimental by another. Conclusions: PNI is a suitable method to obtain information about self-experimentation. An insight that was attained was that personalized (dietary) guidance that supports the individual is needed.
Databáze:	MEDLINE
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