Stigma among ebola disease survivors in Mubende and Kassanda districts, Central Uganda, 2022.

Autor:	Zalwango MG; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Paige S; United States Agency for International Development, Kampala, Uganda., Migisha R; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Nakafeero Simbwa B; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Nsubuga EJ; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Asio A; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Kabami Z; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Zalwango JF; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Kawungezi PC; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Wanyana MW; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., King P; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Naiga HN; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Agaba B; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Zavuga R; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Earle-Richardson G; National Center for Emerging Zoonotic and Infectious Diseases, US Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America., Kwesiga B; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Bulage L; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Kadobera D; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Ario AR; Uganda Public Health Fellowship Program-Uganda National Institute of Public Health, Kampala, Uganda., Harris JR; Division of Global Health Protection, US Centers for Disease Control and Prevention, Kampala, Uganda.
Jazyk:	angličtina
Zdroj:	PLOS global public health [PLOS Glob Public Health] 2024 Dec 16; Vol. 4 (12), pp. e0003272. Date of Electronic Publication: 2024 Dec 16 (Print Publication: 2024).
DOI:	10.1371/journal.pgph.0003272
Abstrakt:	Ebola disease survivors often experience stigma in multiple forms, including felt (perceived) stigma, enacted (action-based) stigma, and institutional stigma. On September 20, 2022, Uganda declared a Sudan Virus Disease (species orthoebolavirus sudanense) outbreak after a patient with confirmed Sudan virus (SUDV) infection was identified in Mubende District. The outbreak led to 142 confirmed and 22 probable cases over the next two months. We examined the types of stigma experienced by survivors and their household members and its effect on their well-being. We conducted a qualitative study during January 2023 in Mubende and Kassanda Districts. We conducted in-depth and key informant interviews with ten SUDV disease survivors, ten household members of SUDV disease survivors, and ten key informants (district officials and health workers in the affected communities). Interviews were recorded, translated, transcribed, and analyzed thematically. Survivors reported experiencing isolation and rejection by community members and loss of work. They reported being denied purchases at shops or having their money collected in a basket and disinfected (enacted stigma), which led to self-isolation (felt stigma). Educational institutions denied admission to some students from affected homes, while parents of children in some affected families stopped sending children to school due to verbal abuse from students and teachers (structural stigma). Prolonged SUDV disease symptoms and additional attention to survivors from responders (including home visits by health workers, public distribution of support items, and conspicuous transport from home to the survivor's clinic) were perceived as aggravating both felt and enacted stigma. Even after the outbreak had been declared over, survivors felt that they were still considered a threat to the community. Survivors experienced mainly enacted stigma which was aggravated by the outbreak response and control activities such as additional attention to survivors from responders. Strengthening community engagement to counteract stigma, rethinking response activities that aggravate stigma, integrated response interventions by partners, private distribution of support items, and increasing awareness and sensitization could reduce stigma among the Ebola disease survivors in future responses. Competing Interests: The authors have declared that no competing interests exist. (Copyright: This is an open access article, free of all copyright, and may be freely reproduced, distributed, transmitted, modified, built upon, or otherwise used by anyone for any lawful purpose. The work is made available under the Creative Commons CC0 public domain dedication.)
Databáze:	MEDLINE
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