Alterations in care for children with special healthcare needs during the early COVID-19 pandemic: ethical and policy considerations.

Autor: Jones J; Ethox Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK. jjone317@jh.edu.; Berman Institute of Bioethics, Johns Hopkins University, 1809 Ashland Ave, Baltimore, MD, 21205, USA. jjone317@jh.edu., Lignou S; Ethox Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK., Unguru Y; Berman Institute of Bioethics, Johns Hopkins University, 1809 Ashland Ave, Baltimore, MD, 21205, USA.; Division of Pediatric Hematology/Oncology, The Herman and Walter Samuelson Children's Hospital at Sinai, Baltimore, MD, USA., Sheehan M; Ethox Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.; Oxford NIHR Biomedical Research Centre, Oxford University Hospitals Trust, Oxford, UK., Dunn M; Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore., Seltzer RR; Berman Institute of Bioethics, Johns Hopkins University, 1809 Ashland Ave, Baltimore, MD, 21205, USA.; Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Jazyk: angličtina
Zdroj: Monash bioethics review [Monash Bioeth Rev] 2024 Dec 11. Date of Electronic Publication: 2024 Dec 11.
DOI: 10.1007/s40592-024-00223-0
Abstrakt: Healthcare delivery and access, both in the United States and globally, were negatively affected during the entirety of the COVID-19 pandemic. This was particularly true during the first year when countries grappled with high rates of illness and implemented non-pharmaceutical interventions such as stay-at-home orders. Among children with special healthcare needs, research from the United Kingdom (U.K.) has shown that the pandemic response uniquely impacted various aspects of their care, including decreased access to care, delays in diagnosis, and poorer chronic disease control. In response to these findings, and to begin to comprehend whether the concerning findings from the nationalized system of healthcare in the U.K. extend to the highly dissimilar United States (U.S.) healthcare context, we reviewed the literature on alterations in access to and delivery of care during the early stages of the COVID-19 pandemic for children with special healthcare needs in the U.S. We then utilize these findings to consider the ethical and policy considerations of alterations in healthcare provision during pandemics and crisis events in the U.K. and U.S. and make recommendations regarding how the needs of CSHCN should be considered during future responses.
Competing Interests: Declarations. Conflict of interest: The authors have no conflict of interest.
(© 2024. The Author(s) under exclusive licence to Monash University.)
Databáze: MEDLINE
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