A qualitative study on the experiences of caregivers of children undergoing surgery for congenital heart diseases.

Autor: Kankaya EA; Department of Surgical Nursing, Dokuz Eylül University Nursing Faculty, Turkey. Electronic address: edayten@gmail.com., Özer Özlü NG; Department of Surgical Nursing, Dokuz Eylül University Nursing Faculty, Turkey., Müezzinler Evsine N; Department of Cardiovascular Surgery, Dokuz Eylul University Hospital, Türkiye.
Jazyk: angličtina
Zdroj: Journal of pediatric nursing [J Pediatr Nurs] 2024 Nov 28; Vol. 80, pp. 137-146. Date of Electronic Publication: 2024 Nov 28.
DOI: 10.1016/j.pedn.2024.11.016
Abstrakt: Objective: This study explores the experiences of caregivers of pediatric cardiac surgery patients, aiming to deepen understanding of their role and improve the caregiving process.
Methods: A qualitative, phenomenological approach was employed using individual, semi-structured interviews with a heterogeneous sample of caregivers (both mothers and fathers) of children who had undergone surgery for congenital heart disease. Interviews were conducted face-to-face from June 2023 to May 2024, following Creswell's interview techniques. Data collection and analysis were performed simultaneously using MAXQDA software.
Results: Participants included caregivers of children aged 2 months to 17 years, with caregivers themselves aged 25 to 50 years. Most children had undergone surgery for congenital heart valve disease, with surgeries ranging from one to three. Three main themes and nine sub-themes were identified: (1) "Comprehensive health journey" described caregivers' experiences from diagnosis through treatment and their interactions with healthcare professionals; (2) "Challenges" encompassed social isolation, financial strain, work-life balance issues, and the impact on the education process; and (3) "Uncertainty" captured caregivers' anxiety about the future and concerns regarding home care.
Conclusion: The findings offer valuable insights into the challenges and needs of caregivers in the pediatric cardiac surgery context, highlighting areas where support services and interventions could be beneficial.
Implications to Practice: The study emphasizes the importance of healthcare professionals providing caregivers with clear information and empathetic support, which can enhance both caregiver well-being and patient outcomes.
Competing Interests: Declaration of competing interest The authors declare that there is no financial support or other conflict of interest associated with this study.
(Copyright © 2024 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
Externí odkaz: