Informal caregivers' roles and needs regarding shared decision-making in severe aortic stenosis.

Autor: van Beek-Peeters JJAM; Tilburg School of Social and Behavioral sciences, Tilburg University, PO Box 90153, 5000 LE Tilburg, the Netherlands; Department of Cardiothoracic Surgery, Amphia Hospital, PO Box 90158, 4800 RK Breda, the Netherlands. Electronic address: jvanbeek1@amphia.nl., Faes MC; Department of Geriatrics, Amphia Hospital, PO Box 90158, 4800 RK Breda, the Netherlands. Electronic address: Mfaes@amphia.nl., Habibovic M; Tilburg School of Social and Behavioral sciences, department of Medical and Clinical Psychology, Tilburg University, PO Box 90153, 5000 LE Tilburg, the Netherlands. Electronic address: m.habibovic@tilburguniversity.edu., van der Meer JBL; Department of Cardiothoracic Surgery, Amphia Hospital, PO Box 90158, 4800 RK Breda, the Netherlands; Erasmus Medical Center, PO Box 1738, 3000 DR Rotterdam, the Netherlands. Electronic address: jopvdmeer@gmail.com., Pel-Littel RE; Vilans, Centre of Expertise for Care and Support, PO Box 8228, 3503 RE Utrecht, the Netherlands; HAN University of Applied Sciences, postbus 6960, 6503 GL Nijmegen, the Netherlands. Electronic address: r.pel-littel@vilans.nl., van Geldorp MWA; Department of Cardiothoracic Surgery, Amphia Hospital, PO Box 90158, 4800 RK Breda, the Netherlands. Electronic address: mvangeldorp@amphia.nl., Van den Branden BJL; Department of Interventional Cardiology, Amphia Hospital, PO Box 90158, 4800 RK Breda, the Netherlands. Electronic address: bvandenbranden@amphia.nl., van der Meer NJM; TIAS School for Business and Society, Tilburg University, PO Box 90153, 5000 LE Tilburg, the Netherlands; Catharina Hospital, PO Box 90153, 5000 LE Eindhoven, the Netherlands. Electronic address: Nardo.vd.Meer@catharinaziekenhuis.nl., Minkman MMN; Vilans, Centre of Expertise for Care and Support, PO Box 8228, 3503 RE Utrecht, the Netherlands; TIAS School for Business and Society, Tilburg University, PO Box 90153, 5000 LE Tilburg, the Netherlands. Electronic address: M.Minkman@tias.edu.
Jazyk: angličtina
Zdroj: Patient education and counseling [Patient Educ Couns] 2024 Nov 15; Vol. 131, pp. 108554. Date of Electronic Publication: 2024 Nov 15.
DOI: 10.1016/j.pec.2024.108554
Abstrakt: Objective: To provide insight into experiences, preferences and needs of informal caregivers (ICs) regarding shared decision-making (SDM) in severe aortic stenosis (AS) of patients ≥ 70 years, and the effect of the level of perceived SDM on ICs' quality of life (QOL) and distress.
Methods: Multiple methods study consisting of a questionnaire at baseline and 3-month follow-up and focus groups.
Results: Ninety-nine ICs (67.6 ± 11.7 years) completed the baseline questionnaire, eighty-two ICs the follow-up questionnaire, ten ICs (70.6 ± 12.6 years) participated in two focus groups. ICs perceived that identifying them as discussion partners and addressing patients' daily lives were least discussed with professionals (26.3 %; 59.6 %). Most ICs (63.9 %) preferred a collaborative decision-making (DM) role. The level of perceived SDM was positively associated with baseline QOL social relations (p = .038), and follow-up QOL psychological health (p = .048) and environment (p = .024). ICs experienced three roles in SDM: supporters in DM, stimulators in clarifying patient's personal context, and DM partners.
Conclusion: ICs play valuable roles in SDM for severe AS, but feel professionals do not consistently identify them as discussion partners.
Practice Implications: Professionals should involve ICs in SDM for discussing older patient's QOL and personal context, which can inform personalized decisions regarding severe AS treatment.
Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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