Children with medical complexity in the emergency department: Parent experiences and information needs.

Autor: Lysak D; Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada. Electronic address: dlysak@ualberta.ca., Ali S; Department of Pediatrics, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, Alberta, Canada. Electronic address: sali@ualberta.ca., Neufeld S; Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada. Electronic address: smn@ualberta.ca., Scott SD; Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada. Electronic address: shannon.scott@ualberta.ca.
Jazyk: angličtina
Zdroj: International emergency nursing [Int Emerg Nurs] 2024 Dec; Vol. 77, pp. 101532. Date of Electronic Publication: 2024 Nov 07.
DOI: 10.1016/j.ienj.2024.101532
Abstrakt: Background: Children with complex medical needs constitute a growing number of pediatric patients that utilize the emergency department, disproportionately more than children outside of this category. Our objective for this qualitative study was to explore information needs and experiences of parents accessing emergency health care for their child with medical complexity.
Methods: Qualitative description guided this study. Parent participants were recruited via purposive sampling and individually interviewed within a pediatric specialty clinic at a Canadian pediatric tertiary care center. Inductive content analysis organized interview data from parents.
Results: Nine, 60-90 min individual interviews were conducted with parents of a child with medical complexity; four content categories emerged: How the emergency department is different for children with medical complexity, parents as key care coordinators, emergency department experience and resilience, and communication and learning preferences.
Conclusion: These families openly shared their experience with pediatric emergency care. Strategies to support transfer of pertinent health information for children with complex medical needs are needed in the emergency department. Interviews with parents of children with complex medical needs provided key insights to inform and improve the care provided in the emergency department for this growing population of children.
Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Authors. Published by Elsevier Ltd.. All rights reserved.)
Databáze: MEDLINE
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