Perspectives of international experts and the Danish citizens on the 'relevant knowledge' that citizens need for making informed choices about participation in cancer screening: Qualitative study.

Autor: Stokholm RN; University Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; Department of Clinical Medicine, Aarhus University, Denmark. Electronic address: ristok@rm.dk., Kirkegaard P; University Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; Department of Clinical Medicine, Aarhus University, Denmark., Larsen MB; Department of Clinical Medicine, Aarhus University, Denmark; Research unit, Horsens Regional Hospital, Denmark., Lauridsen HH; Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, Denmark., Stacey D; Ottawa Hospital Research Institute, University of Ottawa, Canada., Harper DM; University of Michigan, Ann Arbor, MI, USA., Sepucha K; Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA., McCaffery K; Sydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia., Reder M; Institute of Psychology, University of Hildesheim, Hildesheim, Germany., Pignone M; Duke University, Department of Medicine, Durham, USA., Fransen M; Department of Public and Occupational Health, Amsterdam University Medical Center, University of Amsterdam, Amsterdam, the Netherlands; Amsterdam Public Health Research Institute, Quality of Care and Digital Health, Amsterdam, the Netherlands; Department of Behavior and Health, Centre for Prevention, Lifestyle and Health, National Institute for Public Health and the Environment, Bilthoven, the Netherlands., Volk RJ; Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA., Wengström Y; NVS, Karolinska Institutet and Karolinska Comprehensive Cancer Center, Karolinska University Hospital, Stockholm, Sweden., Edwards A; University Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; PRIME Centre Wales, Division of Population Medicine, School of Medicine, Cardiff University, UK., Andersen B; University Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; Department of Clinical Medicine, Aarhus University, Denmark.
Jazyk: angličtina
Zdroj: Patient education and counseling [Patient Educ Couns] 2025 Jan; Vol. 130, pp. 108479. Date of Electronic Publication: 2024 Oct 24.
DOI: 10.1016/j.pec.2024.108479
Abstrakt: Objectives: This study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening.
Methods: This was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted.
Results: Participants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important.
Conclusions: The experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge.
Practice Implications: What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.
Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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