Face and content validity of the EMPOWER-UP questionnaire: a generic measure of empowerment in relational decision-making and problem-solving.

Autor: Marqvorsen EHS; Department of Clinical Medicine, University of Copenhagen, Copenhagen N, 2200, Denmark. emilie.marqvorsen@gmail.com.; The Interdisciplinary Research Unit of Women's, Children's, and Families' Health, the Juliane Marie Centre, Copenhagen University Hospital, Rigshospitalet, Copenhagen Ø, 2100, Denmark. emilie.marqvorsen@gmail.com., Lund L; Palliative Care Research Unit, Department of Geriatrics and Palliative Medicine GP, Bispebjerg and Frederiksberg Hospital, Copenhagen, NV, 2400, Denmark., Biener SN; Department of Nutrition, Exercise and Sports, University of Copenhagen, Copenhagen N, 2200, Denmark., Due-Christensen M; Department of Prevention, Health Promotion and Society, Steno Diabetes Center Copenhagen, Herlev, 2730, Denmark., Husted GR; Department of Research and Development, Danish College of Pharmacy Practice, Pharmakon, Hillerød, 3400, Denmark., Jørgensen R; Unit for Psychiatric Research, Aalborg University Hospital, 9000, Aalborg, Denmark., Mathiesen AS; Department of Endocrinology, Center for Cancer and Organ Diseases, Copenhagen University Hospital - Rigshospitalet, Copenhagen Ø, 2100, Denmark., Olesen ML; The Interdisciplinary Research Unit of Women's, Children's, and Families' Health, the Juliane Marie Centre, Copenhagen University Hospital, Rigshospitalet, Copenhagen Ø, 2100, Denmark., Petersen MA; Palliative Care Research Unit, Department of Geriatrics and Palliative Medicine GP, Bispebjerg and Frederiksberg Hospital, Copenhagen, NV, 2400, Denmark., Pouwer F; Department of Psychology, University of Southern Denmark, 5000, Odense C, Denmark., Rasmussen B; The Centre for Quality and Patient Safety, Institute of Health Transformation - Western Health Partnership, Western Health, St Albans, VIC, Australia., Rothmann MJ; Steno Diabetes Center Odense, Odense University Hospital, Odense C, 5000, Denmark., Thomsen T; Department of Clinical Medicine, University of Copenhagen, Copenhagen N, 2200, Denmark., Winkley K; Faculty of Nursing, Midwifery and Palliative Care, King's College London, London, UK., Zoffmann V; Department of Public Health, University of Copenhagen, Copenhagen K, 1353, Denmark.
Jazyk: angličtina
Zdroj: BMC medical informatics and decision making [BMC Med Inform Decis Mak] 2024 Oct 28; Vol. 24 (1), pp. 313. Date of Electronic Publication: 2024 Oct 28.
DOI: 10.1186/s12911-024-02727-5
Abstrakt: Background: Decision-making and problem-solving processes are powerful activities occurring daily across all healthcare settings. Their empowering potential is seldom fully exploited, and they may even be perceived as disempowering. We developed the EMPOWER-UP questionnaire to enable assessment of healthcare users' perception of empowerment across health conditions, healthcare settings, and healthcare providers' professional backgrounds. This article reports the initial development of EMPOWER-UP, including face and content validation.
Methods: Four grounded theories explaining barriers and enablers to empowerment in relational decision-making and problem-solving were reviewed to generate a preliminary item pool, which was subsequently reduced using constant comparison. Preliminary items were evaluated for face and content validity using an expert panel of seven researchers and cognitive interviews in Danish and English with 29 adults diagnosed with diabetes, cancer, or schizophrenia.
Results: A preliminary pool of 139 items was reduced to 46. Independent feedback from expert panel members resulted in further item reduction and modifications supporting content validity and strengthening the potential for generic use. Forty-one preliminary items were evaluated through 29 cognitive interviews, resulting in a 36-item draft questionnaire deemed to have good face and content validity and generic potential.
Conclusions: Face and content validation using an expert panel and cognitive interviews resulted in a 36-item draft questionnaire with a potential for evaluating empowerment in user-provider interactions regardless of health conditions, healthcare settings, and healthcare providers' professional backgrounds.
(© 2024. The Author(s).)
Databáze: MEDLINE
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