Predictors of quality of life (QOL) and treatment adherence among children with nephrotic syndrome.

Autor: Nambiar SP; College of Nursing, All India Institute of Medical Sciences, Bhubaneswar, Odisha, India., Joseph HB; College of Nursing, All India Institute of Medical Sciences, Bhubaneswar, Odisha, India., Satapathy AK; Department of Pediatrics, All India Institute of Medical Sciences, Bhubaneswar, Odisha, India., Shetty AP; College of Nursing, All India Institute of Medical Sciences, Bhubaneswar, Odisha, India.
Jazyk: angličtina
Zdroj: Journal of family medicine and primary care [J Family Med Prim Care] 2024 Sep; Vol. 13 (9), pp. 3598-3602. Date of Electronic Publication: 2024 Sep 11.
DOI: 10.4103/jfmpc.jfmpc_1825_23
Abstrakt: Introduction: Any significant changes in the growth and development of any aspect of life will ultimately affect the health-related quality of life (HRQOL) of children with nephrotic syndrome. Various factors can influence treatment adherence, which can promote or decline the child's quality of life (QOL). Objective: To assess the quality of life and adherence to treatment regimen and to identify the predictors of QOL and adherence to treatment regimen among children with nephrotic syndrome.
Method: A cross-sectional study was conducted among 59 children with nephrotic syndrome who attended the Paediatric Department of AIIMS, Bhubaneswar, using the PedsQL 4.0 generic core scale to assess the quality of life and adherence response scale. Both descriptive and inferential statistics were performed using the SPSS 20 version.
Results: The overall QOL median score was 93.48, with an IQR of 18.48, which indicated good QOL. A median score of treatment adherence was 16 with IQR 5, which indicated that the overall treatment adherence was good. Type of nephrotic syndrome ( P = 0.014), developmental stage ( P = 0.018), education of mother ( P = 0.026), and occupation of mother ( P = 0.026) were the variables predicted QOL. Duration of disease ( P = 0.006) and duration of therapy ( P = 0.005) significantly predicted treatment adherence.
Conclusion: Children need continuous reinforcement on treatment adherence strategies to attain and maintain good QOL so that it can help to reduce the disease severity. Controlling the predictors that influence the QOL and treatment adherence has to be counseled among the parents so that their adherence can be sustained throughout the disease process to maintain good QOL.
Competing Interests: There are no conflicts of interest.
(Copyright: © 2024 Journal of Family Medicine and Primary Care.)
Databáze: MEDLINE
Externí odkaz:
Nepřihlášeným uživatelům se plný text nezobrazuje