Recording diagnostic conversations for communication research purposes in pediatric leukemia.

Autor: Buursma P; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Schepers SA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Kars MC; University Medical Center Utrecht, Utrecht, The Netherlands., van den Bergh EMM; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Dors N; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Grootenhuis MA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Hoogerbrugge PM; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.
Jazyk: angličtina
Zdroj: Pediatric blood & cancer [Pediatr Blood Cancer] 2025 Jan; Vol. 72 (1), pp. e31395. Date of Electronic Publication: 2024 Oct 27.
DOI: 10.1002/pbc.31395
Abstrakt: Recordings of patient-doctor interactions is a recommended method in communication research. However, concerns are expressed regarding audio-recording of conversations with vulnerable patients. Our study examined experiences of children, parents, and oncologists with recording diagnostic conversations in the pediatric acute leukemia setting. Results show that recording conversations is generally well received by virtually all children and parents. Pediatric oncologists seem to overestimate the expected emotional burden for children and parents, which may lead to gatekeeping by professionals. This in turn may lead to a decrease in patient autonomy and research quality when addressing relevant questions in communication science.
(© 2024 The Author(s). Pediatric Blood & Cancer published by Wiley Periodicals LLC.)
Databáze: MEDLINE
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