Pediatric Learning Health Networks in Solid Organ Transplantation-Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation.

Autor: George RP; Emory University and Children's Healthcare of Atlanta, Atlanta, Georgia, USA., Feldman AG; Digestive Health Institute, Children's Hospital Colorado and the University of Colorado, Aurora, Colorado, USA., McQueen M; Transplant Families, Scottsdale, Arizona, USA., Krise-Confair C; Starzl Network for Excellence in Pediatric Transplantation, UPMC Children's Hospital of Pittsburgh, Pittsburgh, Pennsylvania, USA., Smyth L; The Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA., Lorts A; The Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA., Peng DM; Division of Cardiology, C.S. Mott Hospital, University of Michigan, Ann Arbor, Michigan, USA., Mazariegos GV; Hillman Center for Pediatric Transplantation, Thomas E. Starzl Transplantation Institute, UPMC Children's Hospital of Pittsburgh, Pittsburgh, Pennsylvania, USA., Hooper DK; Department of Pediatrics, Cincinnati Children's Hospital Medical Center and University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.
Jazyk: angličtina
Zdroj: Pediatric transplantation [Pediatr Transplant] 2024 Nov; Vol. 28 (7), pp. e14862.
DOI: 10.1111/petr.14862
Abstrakt: Background: Learning Health Networks (LHN) have evolved within medicine over the past two decades, but their integration into transplantation has been more recent.
Objectives and Methods: In this paper, we describe three LHNs in end-stage organ disease/transplantation, their common and unique features, and how their "actor-oriented" architecture allowed for rapid adaptation to meet the needs of their patients and practitioners during the recent COVID-19 pandemic.
Result: The structure and focus of the Improving Renal Outcomes Collaborative (IROC), Starzl Network for Excellence in Pediatric Transplantation (SNEPT), and the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) are reviewed. We discuss the critical role of patient and family engagement, focusing on collaboration with Transplant Families. Finally, we review challenges common to the LHN concept and potential common areas of alignment to achieve the goal of more rapid and sustained progress to improve health in pediatric transplantation.
Conclusion: LHN in transplantation are essential to accelerate knowledge dissemination and improve outcomes.
(© 2024 Wiley Periodicals LLC.)
Databáze: MEDLINE
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