Parents providing palliative care for children with cancer.

Autor: Rassam RS; Hariri School of Nursing, American University of Beirut, Beirut 1107 2020, Lebanon.; Department of Pediatric Medicine, St Jude Children's Research Hospital, Memphis, TN 38105, USA.; https://orcid.org/0000-0002-8232-8733., Huijer HA; Faculty of Health Sciences, University of Balamand, Al-Kurah, Lebanon.; https://orcid.org/0000-0001-6959-9419., Noureddine S; Hariri School of Nursing, American University of Beirut, Beirut 1107 2020, Lebanon.; https://orcid.org/0000-0001-5133-0913., Smith EML; School of Nursing, University of Alabama at Birmingham, Birmingham, AL 35294, USA.; https://orcid.org/0000-0002-6519-6636., Wolfe J; Department of Pediatrics, Mass General Hospital for Children and Harvard Medical School, Boston, MA 02114, USA.; https://orcid.org/0000-0002-4406-7413., Fares S; Hariri School of Nursing, American University of Beirut, Beirut 1107 2020, Lebanon.; https://orcid.org/0000-0001-8547-2565., Abboud MR; Department of Pediatrics and Adolescent Medicine, American University of Beirut Medical Center, Beirut 1107 2020, Lebanon.; https://orcid.org/0000-0001-8469-6823.
Jazyk: angličtina
Zdroj: Ecancermedicalscience [Ecancermedicalscience] 2024 Jul 01; Vol. 18, pp. 1724. Date of Electronic Publication: 2024 Jul 01 (Print Publication: 2024).
DOI: 10.3332/ecancer.2024.1724
Abstrakt: Parents of children with cancer provide paediatric palliative care (PPC). However, the activities they perform remain underexplored, especially in low- and middle-income countries (LMICs) where the care heavily relies on family involvement. The aim of this study is to identify parental PPC tasks and intentions to perform PPC tasks and to determine their associated factors. A quantitative cross-sectional descriptive design was used to recruit parents of children with cancer from three major paediatric oncology centres in Lebanon. Data were collected through structured interviews using an adapted questionnaire. The statistical analyses included descriptive, bivariate and regression analyses of PPC tasks and intentions. One hundred and five participants completed the study. On average, parents performed 22 PPC activities. The findings suggested statistically significant associations of the number of PPC tasks with the participants' marital status, number of people living with the child, the intentions to perform the tasks and the number of the child's symptoms in the previous week. Examining parents' tasks in PPC in LMICs, such as Lebanon, enhances knowledge of PPC practice in these regions and informs improvement strategies. These results promote PPC understanding, highlight factors influencing PPC delivery and provide a useful measure of PPC tasks performed by parents of children with cancer.
Competing Interests: The authors declare that there is no conflict of interest. The study was conducted in partial fulfilment of the requirements for the degree of Doctor of Philosophy of the Rafic Hariri School of Nursing at the American University of Beirut.
(© the authors; licensee ecancermedicalscience.)
Databáze: MEDLINE