Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study.

Autor: Cronin RM; Department of Internal Medicine, The Ohio State University, Columbus, OH, United States of America., Feng X; Department of Biostatistics, Vanderbilt University Medical Center, Nashville, TN, United States of America., Able A; Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, United States of America., Sutherland S; Vibrent Health, Fairfax, VA, United States of America., Givens B; Vibrent Health, Fairfax, VA, United States of America., Johnston R; Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, United States of America., Depry C; All of Us Research Program, Office of the Director, National Institutes of Health, Bethesda, MD, United States of America., Le Blanc KW; All of Us Research Program, Office of the Director, National Institutes of Health, Bethesda, MD, United States of America., Caro O; Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, United States of America., Mapes B; Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, United States of America., Denny J; All of Us Research Program, Office of the Director, National Institutes of Health, Bethesda, MD, United States of America., Couper MP; Survey Research Center, University of Michigan, Ann Arbor, MI, United States of America.; Department of Biostatistics, School of Public Health, University of Michigan, Ann Arbor, MI, United States of America.; Institute for Social Research, Survey Research Center, University of Michigan, Ann Arbor, MI United States of America., Chen Q; Department of Biostatistics, Vanderbilt University Medical Center, Nashville, TN, United States of America.; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, United States of America.; Vanderbilt Eye Institute, Vanderbilt University Medical Center, Nashville, TN, United States of America., Prabhu Das I; All of Us Research Program, Office of the Director, National Institutes of Health, Bethesda, MD, United States of America.
Jazyk: angličtina
Zdroj: PloS one [PLoS One] 2024 Oct 15; Vol. 19 (10), pp. e0308995. Date of Electronic Publication: 2024 Oct 15 (Print Publication: 2024).
DOI: 10.1371/journal.pone.0308995
Abstrakt: Objective: Retention to complete follow-up surveys in extensive longitudinal epidemiological cohort studies is vital yet challenging. All of Us developed pilot interventions to improve response rates for follow-up surveys.
Study Design and Setting: The pilot interventions occurred from April 27, 2020, to August 3, 2020. The three arms were: (1) telephone appointment [staff members calling participants offering appointments to complete surveys over phone] (2) postal [mail reminder to complete surveys through U.S. Postal Service], and (3) combination of telephone appointment and postal. Controls received digital-only reminders [program-level digital recontact via email or through the participant portal]. Study sites chose their study arm and participants were not randomized.
Results: A total of 50 sites piloted interventions with 17,593 participants, while 47,832 participants comprised controls during the same period. Of all participants, 6,828 (10.4%) completed any follow-up surveys (1448: telephone; 522: postal; 486: combination; 4372: controls). Follow-up survey completions were 24% higher in the telephone appointment arm than in controls in bivariate analyses. When controlling for confounders, telephone appointment and combination arms increased rates of completion similarly compared to controls, while the postal arm had no significant effect (odds ratio [95% Confidence Interval], telephone appointment:2.01[1.81-2.23]; combination:1.91[1.66-2.20]; postal:0.92[0.79-1.07]). Although the effects of the telephone appointment and combination arms were similar, differential effects were observed across sub-populations.
Conclusion: Telephone appointments appeared to be the most successful intervention in our study. Lessons learned about retention interventions, and improvement in follow-up survey completion rates provide generalizable knowledge for similar cohort studies and demonstrate the potential value of precision reminders and engagement with sub-populations of a cohort.
Competing Interests: NO authors have competing interests.
(Copyright: This is an open access article, free of all copyright, and may be freely reproduced, distributed, transmitted, modified, built upon, or otherwise used by anyone for any lawful purpose. The work is made available under the Creative Commons CC0 public domain dedication.)
Databáze: MEDLINE
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