Does adapting a self-report instrument to improve its cognitive accessibility for people with intellectual disability result in a better measure? - A cognitive interview study.

Autor: Kooijmans R; University of Amsterdam, Research Institute of Child Development and Education, P.O. Box 19268, Nieuwe Achtergracht 127, Amsterdam 1018 WS, the Netherlands; Koraal Center of Expertise, P.O. Box 10102, Oisterwijk 5060 GA, the Netherlands. Electronic address: rkooijmans@koraal.nl., van Langen M; Ben Sajet Center, Zwanenburgwal 206, Amsterdam 1011 JH, the Netherlands., Voss H; Ben Sajet Center, Zwanenburgwal 206, Amsterdam 1011 JH, the Netherlands., Reichrath E; Koraal Center of Expertise, P.O. Box 10102, Oisterwijk 5060 GA, the Netherlands., Maljaars J; KU Leuven, Parenting and Special Education Research Unit, Leuven B-3000, Belgium., Dalemans R; Zuyd University of Applied Sciences, Faculty of Healthcare, PO Box 550, Heerlen 6400 AN, the Netherlands., Langdon PE; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry CV4 8UW, United Kingdom., Moonen X; University of Amsterdam, Research Institute of Child Development and Education, P.O. Box 19268, Nieuwe Achtergracht 127, Amsterdam 1018 WS, the Netherlands; Koraal Center of Expertise, P.O. Box 10102, Oisterwijk 5060 GA, the Netherlands; Ben Sajet Center, Zwanenburgwal 206, Amsterdam 1011 JH, the Netherlands.
Jazyk: angličtina
Zdroj: Research in developmental disabilities [Res Dev Disabil] 2024 Nov; Vol. 154, pp. 104851. Date of Electronic Publication: 2024 Oct 12.
DOI: 10.1016/j.ridd.2024.104851
Abstrakt: Background and Aims: We investigated whether improving the cognitive accessibility of a widely used self-report measure leads to better understanding and more accurate answers in a sample of adults with mild intellectual disability and borderline intellectual functioning.
Methods and Procedures: We undertook a series of cognitive interviews before and after adaptation of the instructions and selected items of an existing self-report measure of adaptive functioning. Interview results and participant feedback were supplemented with quantitative comparisons between participant and carer scores.
Outcomes and Results: Adaptation based on participant experiences and preferences combined with evidence-informed guidelines improved understanding and accuracy. Self-report and carer-report scores showed greater convergence after adaptation; this occurred because people with intellectual disabilities appeared to understand the self-report measure more effectively.
Conclusions and Implications: The results show that adaptation of the self-report instrument to suit the needs and preferences of people with mild intellectual disability or borderline intellectual functioning leads to a more accessible measure and more reliable and valid results. Results also highlight the importance of complementing proxy reports with a first-person perspective in assessment as clients and informants may differ in their assessment of behavior and skills.
Competing Interests: Declaration of Competing Interest The authors have no relevant financial or non-financial interests to disclose.
(Copyright © 2024 The Authors. Published by Elsevier Ltd.. All rights reserved.)
Databáze: MEDLINE
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