Disability inclusion in national surveys.

Autor:	Cerilli C; Disability Health Research Center, School of Nursing, Johns Hopkins University, Baltimore, MD 21205, United States., Varadaraj V; Disability Health Research Center, School of Nursing, Johns Hopkins University, Baltimore, MD 21205, United States., Choi J; School of Public Health, Johns Hopkins University, Baltimore, MD 21205, United States., Sweeney F; School of Public Health, Johns Hopkins University, Baltimore, MD 21205, United States., Castro F; Disability Health Research Center, School of Nursing, Johns Hopkins University, Baltimore, MD 21205, United States., Landes SD; Aging Studies Institute, Maxwell School of Citizenship and Public Affairs, Syracuse University, Syracuse, NY 13244, United States., Swenor BK; Disability Health Research Center, School of Nursing, Johns Hopkins University, Baltimore, MD 21205, United States.
Jazyk:	angličtina
Zdroj:	Health affairs scholar [Health Aff Sch] 2024 Sep 26; Vol. 2 (9), pp. qxae117. Date of Electronic Publication: 2024 Sep 26 (Print Publication: 2024).
DOI:	10.1093/haschl/qxae117
Abstrakt:	National surveys are important for understanding the disparities that disabled people experience across social determinants of health; however, limited research has examined the methods used to include disabled people in these surveys. This study reviewed nationally representative surveys administered by the Centers for Disease Control and Prevention (CDC) and the US Census Bureau that collected data in the past 5 years and sampled adults ≥18 years. Data from both publicly available online survey documents and a questionnaire emailed to survey administrators were used to determine whether surveys (1) oversampled disabled people, (2) had a data-accessibility protocol to support data collection, and (3) provided multiple data-collection modalities (eg, phone, paper). Of the 201 surveys identified, 30 met the inclusion criteria for the study. Of these 30 surveys, 1 oversampled disabled people, none had a data-collection accessibility protocol, and 21 provided multiple data-collection modalities. This study highlights barriers and opportunities to including disabled people in national surveys, which is essential for ensuring survey data are generalizable to the US population. Competing Interests: Please see ICMJE form(s) for author conflicts of interest. These have been provided as supplementary materials. (© The Author(s) 2024. Published by Oxford University Press on behalf of Project HOPE - The People-To-People Health Foundation, Inc.)
Databáze:	MEDLINE
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