Unveiling the burden of COPD: perspectives on a patient-reported outcome measure to support communication in outpatient consultations-an interview study among patients.

Autor:	Gronhaug LM; Department of Medicine, Vejle Hospital, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark.; Department of Regional Health Research, University of Southern Denmark, Odense, Denmark., Farver-Vestergaard I; Department of Medicine, Vejle Hospital, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark.; Department of Regional Health Research, University of Southern Denmark, Odense, Denmark., Frølund JC; Department of Medicine, Vejle Hospital, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark., Lindström Egholm C; REHPA, The Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark., Ottesen AL; Department of Medicine, Vejle Hospital, Lillebaelt Hospital, University Hospital of Southern Denmark, Vejle, Denmark.; Department of Regional Health Research, University of Southern Denmark, Odense, Denmark.
Jazyk:	angličtina
Zdroj:	Frontiers in rehabilitation sciences [Front Rehabil Sci] 2024 Sep 02; Vol. 5, pp. 1434298. Date of Electronic Publication: 2024 Sep 02 (Print Publication: 2024).
DOI:	10.3389/fresc.2024.1434298
Abstrakt:	Introduction: Chronic Obstructive Pulmonary Disease (COPD) profoundly affects physical, psychological, and social aspects of life, yet these issues often remain unaddressed. Patient-Reported Outcomes Measures (PROM) have the potential to address these issues by promoting person-centered communication. However, their impact in COPD practice remains uncertain. This study aimed to investigate how patients with COPD perceive the usefulness of a new holistic PROM for general palliative care (PRO-Pall) before and during outpatient consultations. Methods: Semi-structured telephone interviews were conducted with patients diagnosed with moderate to very severe COPD, 2-5 days after consultation at a respiratory outpatient clinic in Denmark. Interviews were transcribed verbatim and analyzed inductively using qualitative content analysis. Results: Nine patients (five males; mean age: 66 years) participated in the study with four themes emerging: (1) Unlocking thoughts: Completing PRO-Pall stimulated patients' self-reflection, which revealed previously overlooked COPD-related issues, particularly psychosocial challenges. (2) Unmasking concerns: Patients felt encouraged to be honest, rather than concealing their concerns. (3) Breaking the ice: PRO-Pall responses enabled direct questioning by healthcare professionals during consultations, initiating discussions on patients' sensitive yet vital COPD-related matters. (4) Deepening the dialogue: Healthcare professionals' targeted and attentive approach fostered more holistic and meaningful discussions, providing most patients with a deeper understanding of psychosocial issues affecting their well-being. Conclusion: Completing PRO-Pall prior to outpatient consultations prompted most patients with COPD to unveil previously unacknowledged psychosocial challenges. During consultations, addressing these challenges initiated open discussions on individual concerns, enhancing most patients' understanding of the multifaceted burden of COPD. Competing Interests: The authors declare that the research was conducted without any commercial or financial relationships that could be perceived as potential conflict of interest. The author(s) declared that they were an editorial board member of Frontiers, at the time of submission. This had no impact on the peer review process and the final decision. (© 2024 Gronhaug, Farver-Vestergaard, Frølund, Lindström Egholm and Ottesen.)
Databáze:	MEDLINE
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