European Reference Network eUROGEN Guidelines on the Management of Anorectal Malformations, Part II: Treatment.

Autor:	Aubert O; Department of Pediatric Surgery, University Medical Center Mannheim, University of Heidelberg, Mannheim, Germany., Irvine WFE; Department of Evidence Based Medicine and Methodology, Qualicura Healthcare Support Agency, Breda, The Netherlands., Aminoff D; AIMAR-Associazione Italiana Malformazioni AnoRettali, Rome, Italy., de Blaauw I; Department of Pediatric Surgery, Radboudumc Amalia Children's Hospital, Nijmegen, The Netherlands., Cascio S; Department of Pediatric Surgery, School of Medicine, University College Dublin and Children's Health Ireland, Dublin, Ireland., Cretolle C; Department of Pediatric Surgery, Urology, and Transplantation, Hôpital Necker Enfants Malades, APHP, Université de Paris Cité - National Rare Disease Center MAREP, Paris, France., Iacobelli BD; Department of the Fetus-Newborn-Infant, Ospedale Bambin Gesù - Medical and Surgical, Rome, Italy., Mantzios K; Department of Evidence Based Medicine and Methodology, Qualicura Healthcare Support Agency, Breda, The Netherlands., Midrio P; Pediatric Surgery Unit, Cà Foncello Hospital, Treviso, Veneto, Italy., Miserez M; Department of Abdominal Surgery, UZ Leuven, KU Leuven, Leuven, Flanders, Belgium., Sarnacki S; Department of Pediatric Surgery, Urology, and Transplantation, Hôpital Necker Enfants Malades, APHP, Université de Paris Cité - National Rare Disease Center MAREP, Paris, France., Schmiedeke E; Department of Pediatric Surgery and Urology, Centre for Child and Youth Health, Klinikum Bremen-Mitte, Bremen, Germany., Schwarzer N; Selfhelp Organization for Parents and Patients Born with Anorectal Malformations-SoMA e.V., Munich, Germany., Sloots C; Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, The Netherlands., Stenström P; Department of Pediatrics, Clinical Sciences Lund University, Skane University Hospital Lund, Lund, Sweden., Lacher M; Department of Pediatric Surgery, University Hospital Leipzig, Leipzig, Germany., Gosemann JH; Department of Pediatric Surgery, University Hospital Leipzig, Leipzig, Germany.
Jazyk:	angličtina
Zdroj:	European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie [Eur J Pediatr Surg] 2024 Sep 19. Date of Electronic Publication: 2024 Sep 19.
DOI:	10.1055/s-0044-1791257
Abstrakt:	Introduction:  Anorectal malformations (ARMs) are rare birth defects affecting the anorectum and oftentimes the genitourinary region. The management of ARM patients is complex and requires highly specialized surgical and medical care. The European Reference Network eUROGEN for rare and complex urogenital conditions aimed to develop comprehensive guidelines for the management of ARM applicable on a European level. Methods:  The Dutch Quality Standard for ARM served as the basis for the development of guidelines. Literature was searched in Medline, Embase, and Cochrane. The ADAPTE method was utilized to incorporate the newest available evidence. A panel of 15 experts from seven European countries assessed currency, acceptability, and applicability of recommendations. Recommendations from the Dutch Quality Standard were adapted, adopted, or rejected and recommendations were formed considering the current evidence, expert opinion, and the European context. Results:  Surgical and medical treatment of ARM, postoperative instructions, toilet training, and management of fecal and urinary incontinence were addressed. Seven new studies were identified. The panel adapted 23 recommendations, adopted 3, and developed 8 de novo. The overall level of newly found evidence was considered low. Conclusion:  Treatment of ARM patients requires a multidisciplinary team and expertise about anatomical and surgical aspects of the disease, as well as long-term follow-up. This guideline offers recommendations for surgical and medical treatment of ARM and associated complications, according to the best available evidence and applicable on a European level. Competing Interests: The authors would like to disclose that two of the authors of this adaptation report (I.D.B., C.S.) were also authors of the Dutch Quality Standard. However, it is important to note that neither I.D.B. nor C.S. has any conflict of interest to declare and they did not advocate for any particular viewpoints or positions in relation to the content of the Dutch Quality Standard. No conflicting interests were declared from the other authors. (Thieme. All rights reserved.)
Databáze:	MEDLINE
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