Recommendations to improve use and dissemination of patient versions of oncological clinical practice guidelines in Germany: results of a multi-stakeholder workshop.

Autor: Könsgen N; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany. nadja.koensgen@uni-wh.de., Hauprich J; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany., Wahlen S; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany., Hellbrecht I; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany., Becker M; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany., Bühn S; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany., Meyer N; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany., Blödt S; Institute for Medical Knowledge Management c/o Philipps University Marburg, Association of the Scientific Medical Societies in Germany, Marburg/Berlin, Germany., Carl G; German Prostate Cancer Support Group, Bonn, Germany., Follmann M; Office of the German Guideline Program in Oncology (GGPO), German Cancer Society, Berlin, Germany., Frenz S; Frauenselbsthilfe Krebs-Bundesverband e.V, Bonn, Germany., Langer T; Office of the German Guideline Program in Oncology (GGPO), German Cancer Society, Berlin, Germany., Nothacker M; Institute for Medical Knowledge Management c/o Philipps University Marburg, Association of the Scientific Medical Societies in Germany, Marburg/Berlin, Germany., Schaefer C; German Agency for Quality in Medicine, Berlin, Germany., Pieper D; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.; Faculty of Health Sciences Brandenburg, Brandenburg Medical School (Theodor Fontane), Institute for Health Services and Health System Research, Rüdersdorf, Germany.; Centre for Health Services Research, Brandenburg Medical School (Theodor Fontane), Rüdersdorf, Germany., Breuing J; Institute for Research in Operative Medicine (IFOM), Witten/Herdecke University, Cologne, Germany.
Jazyk: angličtina
Zdroj: BMC public health [BMC Public Health] 2024 Sep 03; Vol. 24 (1), pp. 2393. Date of Electronic Publication: 2024 Sep 03.
DOI: 10.1186/s12889-024-19893-w
Abstrakt: Background: Oncological patients have high information needs that are often unmet. Patient versions of oncological clinical practice guidelines (PVG) translate clinical practice guidelines into laypersons' language and might help to address patients' information needs. Currently, 30 oncological PVG have been published in Germany and more are being developed. Following a large multi-phase project on oncological PVGs in Germany, recommendations to improve use and dissemination of PVG were adopted in a multi-stakeholder workshop.
Methods: Organisations representing users of PVGs (patients, medical personnel, and multipliers), creators, initiators/funding organisations of PVGs, and organisations with methodological expertise in the development of clinical practice guidelines or in patient health information were invited to participate. The workshop included a World Café for discussion of pre-selected recommendations and structured consensus procedure for of all recommendations. Recommendations with agreement of > 75% were approved, and in case of ≤ 75% agreement, recommendations were rejected.
Results: The workshop took place on 24th April 2023 in Cologne, Germany. Overall, 23 people from 24 organisations participated in the discussion. Of 35 suggested recommendations 28 recommendations reached consensus and were approved. The recommendations referred to the topics dissemination (N = 13), design and format (N = 7), (digital) links (N = 5), digitalisation (N = 4), up-to-dateness (N = 3), and use of the PVG in collaboration between healthcare providers and patients (N = 3).
Conclusion: The practical recommendations consider various perspectives and can help to improve use and dissemination of oncological PVG in Germany. The inclusion of different stakeholders could facilitate the transfer of the results into practice.
(© 2024. The Author(s).)
Databáze: MEDLINE
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