| Autor: |
Daal MV; Department of Bioethics & Health Humanities, Julius Center for Health Sciences & Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., de Kanter AJ; Department of Bioethics & Health Humanities, Julius Center for Health Sciences & Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., Custers RJ; Department of Orthopedic Surgery, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., Martínez-Sanz E; Department of Anatomy & Embryology, Faculty of Medicine, Complutense University of Madrid, Madrid, Spain., Bredenoord AL; Erasmus School of Philosophy, Erasmus University Rotterdam, Rotterdam, The Netherlands., Graeff N; Department of Medical Ethics & Health Law, Leiden University Medical Center, Leiden University, Leiden, The Netherlands. |
| Abstrakt: |
Background: Perspectives of patients, parents and professional experts on personalized regenerative implants for regenerative medicine purposes are largely unknown. Method: To better understand these perspectives, we conducted four focus groups with professional experts of mixed European nationality (n = 8), Dutch patients with regular implants (n = 8), Dutch and Belgian (n = 5) and Spanish (n = 8) parents of children with cleft palate. Results: Two overarching themes were identified: 'patient-centered research and care' and 'ambivalent attitudes toward personalized regenerative implants'. Discussion: The results reveal that stakeholders should adopt a participatory rather than an impairment discourse and address the ambivalence among professional experts, patients and parents. Conclusion: Considering stakeholder perspectives facilitates ethical and responsible development and use of personalized regenerative implants. |
