The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study.
| Autor: | Joren CY; University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Aris-Meijer JL; University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Kremer LCM; Princess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The Netherlands., Hofman SC; University Medical Center Utrecht, Wilhelmina Children's Hospital, Lundlaan 6, 3584 EA Utrecht, The Netherlands., Rippen-Wagner H; Dutch Foundation Child and Hospital, 3527 GV Utrecht, The Netherlands., Slingerland-Blom R; Dutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands., van der Velden C; Dutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands., Schuiling-Otten MA; Dutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands., Project Team Icp; University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Verhagen AAE; University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Kars MC; Center of Expertise in Palliative Care Utrecht, Julius Center of Health and Primary Care, UMC Utrecht, Universiteitsweg 100, 3584 CG Utrecht, The Netherlands. |
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| Jazyk: | angličtina |
| Zdroj: | Children (Basel, Switzerland) [Children (Basel)] 2024 Aug 11; Vol. 11 (8). Date of Electronic Publication: 2024 Aug 11. |
| DOI: | 10.3390/children11080967 |
| Abstrakt: | Background/objective: The Individual Care Plan (ICP) for pediatric palliative care was developed to provide person-centered care for the individual child and family. Currently, a lack of clarity remains regarding the use and function of the ICP in daily practice. To further implement the ICP, it is important to identify how parents and healthcare professionals use the ICP and which obstacles or benefits are experienced. Methods: This mixed-method study used qualitative interviews and quantitative questionnaires in (bereaved) parents and healthcare professionals with experience with the ICP. Results: Parents and healthcare professionals used the ICP to establish a joint plan for care and treatment of the child to coordinate care and to achieve child- and family-centered care. This includes both obstacles that complicate achieving care goals and benefits that make it easier. Furthermore, responsibilities for the ICP remained unclear, and there was no set point in the illness trajectory for drawing up the ICP. Conclusions: Parents and healthcare professionals use the ICP as intended. However, uncertainties regarding timing, roles and responsibilities prevent optimal use of the ICP. Agreements on timing and responsibilities are needed for further ICP implementation in daily pediatric palliative care practice. |
| Databáze: | MEDLINE |
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